Table 2.
Outcome measures
| Study instrument | Description |
|---|---|
| Resource use and information seeking | Unvalidated questionnaire |
| Resource satisfaction questionnaire | Unvalidated questionnaire |
| Bronchiectasis knowledge questionnaire | Unvalidated questionnaire |
| QOL-B | Validated Quality of Life Questionnaire-Bronchiectasis [26] |
| SGRQ | Validated St George’s Respiratory Questionnaire [3] |
| HADS | Validated Hospital Anxiety and Depression Scale [27] |
| FIS | Validated Fatigue Impact Scale [28] |
| EQ-5D | Validated Euroqol 5-dimension quality of life questionnaire [29] |
| Number of unscheduled visits | Patient’s report of healthcare visits |
| Exacerbation frequency | Patient’s report of number of exacerbations |
| FEV1 (absolute value and % predicted) | Lung function test (forced expiratory volume) using calibrated equipment |