Table 1.

Demographic for the Children with Medical Complexity (CMC) cohort and the Greater Cincinnati Asthma Risks Study (GCARS) comparator cohort

	CMC Cohort (n=167)		GCARS Cohort (n=770)		p-value*
	n	%	n	%
Patient Characteristics
Age in years [median, (IQR)]	7.8	(4.2-12.3)	5.4	(2.9-9.0)	<0.0001
Male sex	105	62.9	500	64.9	0.61
Race					<0.0001
White	138	82.6	254	33.0
Black	23	13.8	440	57.1
Other	6	3.6	76	9.8
Hispanic Ethnicity	2	1.2	25	3.3	0.15
Primary Insurer					<0.0001
Private	67	40.1	171	22.2
Public	100	59.9	599	77.8
Secondary Insurer	131	81.4
Caregiver Characteristics
Age in years[median, (IQR)]	40	(32-46)	30	(26-35)	<0.0001
Male sex	24	14.4	81	10.5	0.15
Marital Status					<0.0001
Single	33	19.9	484	66.3
Married	98	59.0	209	28.6
Separated	14	8.4	34	4.7
Divorced	18	10.8	3	0.4
Widowed	3	1.8	0	0
Clinical Characteristics (Patients in CMC Cohort)
Complex Chronic Conditions
Neurologic/Neuromuscular	119	74.4
Congenital/Genetic defect	113	70.6
Gastrointestinal	109	68.1
Cardiovascular	83	51.9
Respiratory	77	48.1
Metabolic	54	33.8
Renal	53	33.1
Transplant/Miscellaneous	46	28.8
Neonatal	40	25.0
Hematology/Immunodeficiency	29	18.1
Malignancy	17	10.6
CCC count [median, (IQR)]	5	[3-6]
Technology Dependence	119	71.3
Gastrointestinal	104	65.0
Miscellaneous	46	28.8
Respiratory	44	27.5
Neurologic/Neuromuscular	18	11.3
Cardiovascular	13	8.1
Renal	14	8.8
Metabolic	4	2.5
Number of Subspecialists [median, (IQR)]	7	[5-10]

^*p-value assessing comparison between CMC and GCARS cohorts using Chi-square test for categorical variables and Wilcoxon Rank Sum test for continuous variables