Table 3.

Family Reported Impact of Caring for a Child with Medical Complexity (CMC).^*

	CMC Cohort (n=167)
	n	%
Family's out of pocket health care costs in last 12 months
<$250	73	44.0
$250-499	27	16.3
$500-999	21	12.7
$1,000-4,999	30	18.1
≥$5,000	15	9.0
Child's health care caused financial problems	82	49.7
Family member stopped working because of child's health	101	60.5
Family member cut work to care for the child	110	65.9
Family member avoided changing jobs to maintain health insurance	64	39.0
Hours/week spent in care coordination [median, (IQR)]	3	(1-7)

^*Questions adapted from National Survey of Children with Special Health Care Needs (NS-CSHCN)