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. 2016 Apr 12;5(2):e55. doi: 10.2196/resprot.5156

Table 3.

Parental opinion about having a blog or forum as a source of support parent-to-parent or just for the children.

Source of Support Parent Opinion
Blog or forum as a source of support for parent-to-parent Parent 3 “If somebody was going through a similar situation, you could offer that I’ve been there, and you give … so even though it may not pertain to you, because right now [your daughter] is doing well and you already lived with it, as somebody else new comes, too, you could pop in and say … where you need to connect with others and chat.… (looking at parent 4)”

Parent 4 “Yeah. I’d be very happy to be able to say to somebody, ‘Hey you can get through this.’ In fact, I went and did a talk at the [hospital] and it felt good to do it, sort of give some hope back, I guess … I know when I was going through it, I was pretty much a wreck.…”
Blog or forum as a source of support just for the children Parent 1 “If you had a tab for adults and a tab for kids, I think would be better you know … just letting them go into their own site. I just think … if a parent is asking a question about something that maybe a parent doesn’t want their child to see, you know, like something went wrong … if the kids amongst themselves want to talk about, ‘hey, this is what I did,’ you know, that’s different than coming out of our fear as parents.… [If the kids have their own site] … so they’re not seeing the kind of … I think it would be better, you know?”

Parent 3 “I think you have to get the kids involved with it, too. I showed him all of the pictures. I think the pictures really helped … but I was hoping that there could be a little bit more of that … because this is a safer place.”

Parent 4 “I think I wonder about whether you want the kids—like, I kind of think sometimes the kids should almost have a different area than the adults for some of that stuff.”