Table 1.
Rank | Prioritized Themes | Ranked as Important in Gathering Genetic/Genomic Information from AA Families |
---|---|---|
1 | Characteristics of African-American families (“Fictive Kin”) “Othermothers” not captured in current pedigree nomenclature |
50/50 |
2 | Providers need to acknowledge the feeling of “altruism” among AA families when promoting their health and the health of other family members |
50/50 |
3 | Unexpected parenting information can be a barrier | 30/50 |
4 | Privacy issues, and confidentiality were of grave concerns | 30/50 |