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. Author manuscript; available in PMC: 2016 May 1.
Published in final edited form as: Calcif Tissue Int. 2015 Dec 28;98(5):489–496. doi: 10.1007/s00223-015-0103-5
Patient Gender DOB Age (2001) Heritage Measles Antibody Age at Diagnosis (years) FH PDB* Diagnosis made by Pagetic bones Sites Living 2011 Musculoskeletal Morbidity
1 M 1936 65 Portugal UNK <40 Yes P, X, B 14 R/L pelvis, C4, LS spine, T9, sacrum, R/L pelvis, L femur, L/R humerus, L/R scapula, L tibia Yes Spinal stenosis, fracture spine
2 M 1925 76 Lebanon Yes 41-50 Yes X 8 Skull, R/L pelvis, R femur, L 4th rib T spine, L 4 and L5, sacrum Yes Spinal stenosis
3 M 1946 55 Italy Scotland Yes <40 No X 3 Sacrum, L 4 and R pelvis Yes R THR, gout
4 M 1928 73 Greece Turkey Yes 41-50 No B 5 R tibia, L/R pelvis, R/L femur Yes Spinal stenosis, fracture tibia, R THR
5 F 1928 73 Greece Yes 61-70 No P-X-B 2 Skull, L tibia Yes Hearing loss
6 M 1922 79 Albania Yes 41-50 No B 8 L/R pelvis, L1 and L3, T11 and T12, R/L femur, R scapula, skull Yes Spinal stenosis
7 F 1939 62 Portugal Yes 61-70 No X 1 L pelvis Yes Crouzon's in grandchild
8 M 1927 74 Greece Yes 51-60 No X 5 5 R/L pelvis, L femur and T spine, LS spine Yes Spinal stenosis, fracture L femur
9 M 1930 71 Turkey Yes 41-50 No X 1 L tibia Yes L TKR

Family history of PDB in 1st degree relative; P=pain / X= x-ray / B= blood lest. Three samples were improperly delivered to the lab for measles antibody titer. Patients labeled unknown are presumed alive given last visit in medical record, but not confirmed by visit since 2010.