Patient	Gender	DOB	Age (2001)	Heritage	Measles Antibody	Age at Diagnosis (years)	FH PDB*	Diagnosis made by	Pagetic bones	Sites	Living (2011)	Musculoskeletal Morbidity
1	F	1918	73	Italy	Yes	71-80	Yes	P-X	4	LS spine, sacrum, L/R femurs	↓80	Spinal stenosis
2	F	1933	68	Italy	Yes	51-60	Yes	P-X-B	3	R/L pelvis, L3 and L5	Yes
3	M	1935	66	Quebec	Yes	41-50	No	X	2	Sacrum, R pelvis
4	F	1926	75	Turkey	Yes	<40	No	P-B	2	Skull, R pelvis	Yes	Endstage DJD R hip, hearing loss
5	M	1971	30	USA	Yes	<40	No	B	5	R scapula, R humerus, L3 and 5, sternum, skull	Yes	Gout
6	M	1918	83	Russia	Yes	51-60	No	X	2	Skull, R pelvis	↓87	DJD R hip
7	M	1950	51	Italy	Yes	41-50	No	X	1	L pelvis
8	F	1915	86	Russia Poland	Yes	61-70	No	X-B	2	Skull, L femur	↓95	Fracture L femur
9	M	1933	68	Albania	Yes	<40	No	B	1	Skull	unknown	Hearing loss
10	M	1932	69	Italy	Yes	41-50	No	B	11	R/L pelvis, sacrum, R/L femur, LS spine, skull, T spine, L tibia, R humerus, R ribs	Yes	Spinal stenosis
11	F	1947	54	Quebec	Yes	41-50	No	B	2	Skull, R tibia	Yes
12	F	1928	73	Italy	Yes	41-50	No	P	1	R tibia	unknown	R TKR
13	M	1930	71	Ireland	Yes	41-50	No	X	4	Sacrum, L5, L pelvis, R femur	↓76	Low back pain, gout giant cell arteritis
14	F	1961	40	USA	Unknown	41-50	No	X	1	L pelvis	Yes
15	M	1932	69	France	Yes	41-50	No	X	3	Sacrum, R femur, L tibia	Yes	Fracture L tibia
16	M	1920	81	Russia Lithuania	Unknown	51-60	No	P-B	7	Sacrum, R/L pelvis, scapula, R clavicle, R/L femurs	↓90	Fracture femur
17	M	1943	58	Africa	Yes	51-60	No	P	1	L2	Yes	Low back pain
18	F	1928	73	Armenian	Yes	61-70	No	P-X	4	Sacrum, L3, L femur, R pelvis	Yes	Low back pain
19	M	1925	76	USA	Yes	61-70	Yes	B	2	R pelvis, R femur	↓86	Endstage DJD R hip
20	F	1924	77	Russia Austria	Yes	41-50	Yes	P-X-B	1	L pelvis	Yes	THR (bilateral)
21	M	1948	53	Quebec, Poland, Czech	Yes	41-50	No	X-B	1	R pelvis	unknown	Fracture femur
22	F	1927	74	Nepal	Yes	71-80	No	P-X-B	3	R/L pelvis, L3 and L4	unknown	Fracture spine
23	M	1931	70	Ireland Scotland	Yes	61-70	Yes	X	2	R scapula, L femur	unknown
24	F	1942	59	Italy Ireland	Yes	51-60	Yes	P	2	C2, L pelvis	Yes	Low back pain/disc herniation with srugery, child with HME
25	M	1923	78	Italy	Yes	41-50	Yes	X-B	7	Skull, L pelvis, R femur, R humerus, C-spine, tibia, fibula	Yes	Hyperparathyroidism, low back pain, neck pain
26	M	1933	68	Quebec	Unknown	61-70	No	P-X	3	Sacrum, R pelvis, R tibia	unknown	Gout
27	M	1919	82	Sicily	Yes	51-60	Yes	X-B	2	Skull, L3	↓87	Low back pain, gout
28	M	1918	83	Russia	Yes	71-80	No	P	3	R tibia, L femur, L 4	unknown	Fracture L femur
29	F	1924	77	Italy	Yes	51-60	No	P-X-B	3	Skull, L pelvis and L foot	↓88	Fracture L hip
30	M	1939	62	Italy	Yes	41-50	No	X-B	1	L femur	Yes	Fracture L femur
31	M	1921	80	Sicily	Yes	61-70	No	X	1	R femur	↓90	Low back pain, gout
32	M	1914	87	Lithuania	Yes	61-70	Yes	B	3	L humerus, R pelvis, R femur	↓96	Fracture R femur, gout
33	F	1935	66	Ireland	Yes	51-60	No	X-B	2	R/L pelvis	unknown

Lumbar spine lesions are counted as one, although the distribution of involvement varied; > 3 vertebral bodies = LS Spine w/o further definition FH indicates a first degree relative with PDB

Diagnosis made by x=x-ray, p= pain and b= blood test (elevated serum alkaline phosphatase)