TABLE 4.
Q1: | What is an advance directive? |
A: | A legal form that helps doctors and family members understand wishes about healthcare at a future time. |
Q2: | What is a good thing about having an advance directive? |
A: | It can help your doctors and family decide about treatments if you are too ill to decide for yourself, following your values and wishes. |
Q3: | What does a healthcare agent or proxy do for you? |
A: | Makes healthcare decisions [if appropriate, inquire about potentially serious outcomes of such decisions]. |
Q4: | What persons would you consider to be your agent? |
A: | [Specific to person: any adult the person knows and has a social relationship with, such as spouse, adult child, parent, sibling, grandparent, grandchild, or a close friend]. |
Q5: | Who would you choose as your agent? |
A: | [Specific to person] |
Q6: | Why would you choose/trust this person? |
A: | [Specific to person: identifies someone the patient trusts, knows values, will respect wishes]. (Examiner should attend to undue influence or coercion.) |
Q7: | [Ask only if the person names someone who is involved in conflict or abuse, or someone about whom there is concern regarding the agent’s capacity to be an appropriate agent.] Some people are concerned that your family member/friend may not be the best person because. Can you explain to me how you think about that? |
A: | [Specific to person] |
Q8: | Do you have to fill out an advance directive? |
A: | No. |
Q9: | Why do you want or not want to do it? |
A: | To have someone to make decisions for me if (or because now) I cannot. (Or person provides reasons why they are not comfortable with it.) |
Q10: | What happens if your illness gets worse and you are unable to speak for yourself? |
A: | The person would make decisions for me. |
Q11: | Who would you choose as your agent? |
A: | [Specific to person] (Repeats Q4; examiner assess consistency.) |