Table 3.

Theme: Suggestions for Best Practice

Suggestion	Supportive Participant Quotes
Offer pre-test counseling	“what I would want to know ahead of time is what to anticipate, what are the risks, what are the benefits”
Use clear graphics	“..something like this you really have to [be], to use a government term, user-friendly. And you have to have it [the graphics] so that even a medium level can understand and if you get too technical then those people can’t comprehend”
Review participants’ own scan images during disclosure	In response to question about whether images of a normal vs. AD brain were helpful, “We haven’t seen what our own brains look like, so we can’t really compare it.“ “When its going on in the brain, we can’t see it, so we, it’s more of an abstract concept…When you see a picture, when you see that kind of thing, for me it makes it less abstract.”
Offer take home materials with follow up options	“I like the idea that at the end of our meeting, you have already prepared a package of these are your options…this is the information and you give me that as I am leaving. Don’t give it to me at the appointment, because I am going to rifle through it and try to follow along, but you give that to me at the end, and then I am armed with all the information that we went over in that meeting and I have it and then I am able to do with it what I need to, if I have a follow up call I have that information. “
Call patients post-disclosure to address emerging questions	“…there on the spot, you don’t know what to ask. Because it’s depending upon what it is that they have told you, you don’t know what to anticipate. So it’s almost as if you need a period to digest everything and then your better able to formulate whatever the question may be” “A phone is a great communicator. And the person can call and say do you have any questions? How are things going for you? “
Communicate seamlessly with primary care providers	“Okay, so you say go see your primary care [provider], so is there communication between this group and this group and this group? So that everybody is sort of on the same page.”