Table 6.
Clinical guidelines and pathways identified (n = 12)
| Category | Reference | Date | Title | Disease | Setting | Emmanuel’s criteriaa n (%) | Recommendations based on…b |
|---|---|---|---|---|---|---|---|
| Guidelines in non-cancer | Aldasoro et al. [22] | 2012 | Necesidades en cuidados paliativos de las enfermedades no oncológicas. Un estudio cualitativo desde la perspectiva de profesionales, pacientes y personas cuidadoras (Needs in PC of the non oncologic diseases. A qualitative study from the professionals perspective, patients and carers) | Non cancer | All settings | 4 (36 %) | Other options: Mixed methods corresponding to the “focused ethnography” |
| Pathways in non-cancer | Arnedillo et al. [23] | 2012 | Consenso sobre Atención Integral de las Agudizaciones de la Enfermedad Pulmonar Obstructiva Crónica ATINA-EPOC (Consensus on integrated care of acute exacerbations of chronic obstructive pulmonary disease ATINA-EPOC) | COPD | Not applicable | 8 (73 %) | Consensus methods only |
| Pathways in non-cancer | Gómez-Batiste et al. [24] | 2011 | Proyecto NECPAL CCOMS-ICO. Identificación y atención integral-integrada de personas con enfermedades crónicas avanzadas en servicios de salud y sociales (NECPAL CCOMS-ICO Project. Identification and Integral-integrated attention of patients with advanced chronic diseases in health and social services) | Advanced chronic diseases | All settings | 5 (45 %) | Systematic review and consensus methods |
| Pathway general approach | Agustín et al. [17] | 2011 | Manual para el manejo del paciente en Cuidados Paliativos en Urgencias Extrahospitalarias (Manual for patient management in PC in Extrahospital emergencies) | Cancer | Emergencies outside the hospitals | 4 (36 %) | Consensus methods only |
| Guidelines general approach | SECPAL [15] | 2010 | Guía de Cuidados Paliativos (Palliative Care Guideline) | Cáncer and non cáncer | All settings | 3 (27 %) | Unclear methods |
| Guidelines general approach | Colomer et al. [16] | 2009 | Unidad de Cuidados Paliativos: Estándares y recomendaciones (Palliative Care Unit: Standards and recommendations) | Cáncer and non cáncer | All settings | 8 (73 %) | Systematic review and consensus methods |
| Guidelines general approach | Arrieta et al. [13] | 2008 | Guía de Práctica Clínica sobre Cuidados Paliativos (Clinical practical guideline on Palliative care) | Cancer and non cancer | All settings | 10 (91 %) | Systematic review, consensus methods, evidence based and quality assessment |
| Guidelines general approach | González et al. [14] | 2008 | Guía de Cuidados Paliativos de la Comunidad de Madrid (Palliative Care guidelines of the Autonomous Community of Madrid) | Cancer and non cancer | All settings | 5 (45 %) | Unclear methods |
| Pathways general approach | Cía et al. [18] | 2007 | Proceso asistencial integrado de Cuidados Paliativos (Palliative Care Integrated assistential Process) | Cancer and non cancer | Home and hospital settings | 7 (63 %) | Systematic review and consensus methods |
| Guidelines in cancer | Carvajal et al. [19] | 2006 | Guía de recomendaciones clínicas: Cáncer colorrectal (Clinical recommendation guideline: Colon cancer) | Colorrectal cancer | All settings | 4 (36 %) | Systematic review and consensus methods |
| Pathways in cancer | Naveira et al. [53] | 2005 | Cuidados paliativos en el enfermo oncologico. Documentos para la gestión integrada de procesos asistenciales relacionados con el cancer. Proyecto Oncoguias (Palliative Care for the oncologic patient. Documents for integrated management of assitential processes related to Cancer. “Oncoguías” Project) | Cancer | All settings | 4 (36 %) | Unclear methods |
| Pathways general approach | Hernández et al. [17] | 2004 | Programa de cuidados domiciliarios en atención primaria (Home Care program in Primary attention) | Cancer and non cancer | Home setting | 6 (56 %) | Unclear |
aThe 11 aspects assessed by “Emmanuel’s” are: discussion of illness limitations and prognosis; recommendations for conducting a whole patient assessment including the patient’s physical, social, psychological and spiritual issues, their family and community setting; recommendations for when to make these recommendations; recommendations on when PC should be integrated; assessment of the patient’s goals for care, continuous goal adjustment as the illness and the person’s disease progresses, PC interventions to reduce suffering, advance care planning, recommendations on involving a PC team, recommendations on PC at the last moments of life and recommendations on grief and bereavement [10]
bThe guidelines/pathays’ recommendations were based on the following methods: 1) Systematic review, consensus methods, evidence based and quality assessment; 2) Systematic review and consensus methods; 3) Systematic review only; 4) Consensus methods only; 5) Unclear methods; 6) Other options