Table 7.
Descriptive, strategic and analytical studies on PC integration in Spain (n = 35)
| Category | Reference | Date | Documents titles | Type | Disease | Design | Setting | Total Hawker Score(1) |
|---|---|---|---|---|---|---|---|---|
| Descriptive documents (n = 4) | Alberola et al. [26] | 2001 | Modelos de Cuidados Paliativos en pacientes con cáncer (Pallitave Care models in cancer patients) | Models | Cancer | Models description | General University Hospital of Valencia; Oncology Catalan Institute, Barcelona; University Hospital “Dr Negrín”, Las Palmas; Clinic University Hospital of Valladolid | 10 |
| Arrieta et al. [21] | 2012 | Cuidados paliativos. Proceso asistencial integrado Araba (Palliative Care. “Araba” Integrated assistential Process) | Models | Cancer and non-cancer | Model description | None | Not applicable | |
| Pascual N. [27] | 2011 | Modelos de atención a pacientes oncológicos terminales en Andalucía: una mirada sociológica (Models of oncologic terminal patients attention in Andalucia) | Models | Cancer | Multimode: Quantitative and qualitative tools | None | 28 | |
| Rubi et al. [25] | 2005 | Cuidados Paliativos en las enfermedades crónicas en fase avanzada. Situación actual y propuesta de organización asistencial (Palliative Care in advanced chronic respiratory disease. Status and assistential proposal for organisation) | Review and proposal | Advanced chronic respiratory disease | Narrative review | None | 16 | |
| Strategic documents (n = 17) | Gómez-Batiste et al. [37] | 2013 | Identificación de personas con enfermedades crónicas avanzadas y neceisdad de cuidados paliativos en los servicios socio-sanitarios: herramienta NECPAL CCOMS-ICO© (Identification of people with chronic advanced diseases and need of palliative care in sociosanitary services: elaboration of the NECPAL CCOMS-ICO© tool) | Concrete situations | Advanced chronic diseases | Descriptive | None | 15 |
| Miguez C. [33] | 2010 | Guía formativa del residente de oncología radioterápica. (Training guideline for resident of radiotherapic oncology) | Concrete situations | Radiotherapic oncology | Not applicable | None | Not applicable | |
| Castellanos et al. [35] | 2007 | Plan integral de atención sociosanitaria al deterioro cognitivo en Extremadura PIDEX (Integral plan of sociosanitary attention to cognitive impairment in Extremadura PIDEX) | Concrete situations | Cognitive impairment | Not applicable | None | Not applicable | |
| Herrera et al. [54] | 2006 | Primer nivel asistencial en Cuidados paliativos: Evolución del contenido de la cartera de servicios de atención primaria y criterios de derivación al nivel de soporte.(Primary Palliative Care: Development of the contents of the primary care services portfolio and criteria for referral according to complexity) | Concrete situations | Cancer and non-cancer | Not applicable | None | 19 | |
| Gómez-Batiste et al. [45] | 2012 | Proyecto de demonstración de la Organización Mundial de la Salud de Cataluña sobre implementación de cuidados paliativos: resultados cuantitativos y cualitativos en 20 años (The Catalonia World Health Organization demonstration project for palliative care implementation: quantitative and qualitative results at 20 years) | Assessment | Cancer and non-cancer diseases | Quantitative and qualitative | None | 20 | |
| Gómez-Batiste et al. | 2007 | Proyecto de demonstración de la Organización Mundial de la Salud de Cataluña en 15 años (Catalonia WHO palliative care demonstration project at 15 Years. 2005) | Assessment | Cancer and non-cancer | Unclear | None | 20 | |
| Gómez-Batiste et al. [39] | 2006 | Consumo de recursos y costes de los servicios de cuidados paliativos en España: un studio prospective multi-céntrico. (Resource consumption and costs of palliative care services in Spain: a multicenter prospective study) | Assessment | Cancer and non-cancer | Descriptive-observational, prospective, longitudinal Multicenter Study | None | 22 | |
| Cía et al. [28] | 2008 | Plan andaluz de Cuidados Paliativos (Andalusian plan for palliative care) | Regional Plan | Cancer and non-cancer | Not applicable | None | Not applicable | |
| Gago et al. [29] | 2009 | Estrategia de Cuidados Paliativos para Asturias (Palliative care strategy for Asturias) | Regional Plan | Cancer and non-cancer | Not applicable | None | Not applicable | |
| Amorín et al. [30] | 2009 | Programa de Cuidados Paliativos de Aragón (Palliative care strategy for Aragón) | Regional Plan | Cancer and non-cancer | Not applicable | None | Not applicable | |
| López et al. [31] | 2010 | Plan integral de Cuidados paliativos de la comunidad Valenciana (Palliative care integral plan for the Comunidad Valenciana) | Regional Plan | Cáncer and non-cancer | Not applicable | None | Not applicable | |
| Unknown | Unknown | Programa Integral Atención Paliativa Cantabria (Palliative integral attention programme for Cantabria) | Regional Plan | Cáncer and non-cancer | Not applicable | None | Not applicable | |
| Aguilera et al. [55] | 2005 | Plan integral de Cuidados Paliativos de la Comunidad de Madrid. 2005–2008 (Palliative Care integral plan for the Community of Madrid. 2005–2008) | Regional Plan | Cáncer and non-cancer | Not applicable | None | Not applicable | |
| Fernández et al. [33] | 2007 | Plan Integral de Cuidados Paliativos de la Comunidad Autónoma de la Región de Murcia 2006–2009 (Palliative Care integral plan for the Community of Murcia. 2006–2009) | Regional Plan | Cáncer and non-cancer | Not applicable | None | Not applicable | |
| García-Baquero et al. [14] | 2010 | Borrador del Plan estratégico de Cuidados paliativos de la Comunidad de Madrid, 2010–2014 (Draft of the Palliative Care strategic plan for the Community of Madrid,2010–2014) | Regional Plan | Cáncer and non-cancer | Not applicable | None | Not applicable | |
| Gobierno vasco [56] | 2006 | Plan de atención a pacientes en la fase final de la vida o Cuidados Paliativos de la Comunidad autónoma vasca (Plan of patients attention in end of life stage or Palliative Care in the Basque Autonomous región) | Regional Plan | Cancer and non-cancer | Not applicable | None | Not applicable | |
| Pascual et al. [2] | 2011 | Estrategia en Cuidados Paliativos del Sistema Nacional de Salud. Actualización 2010–2014 (Palliative Care Strategy of the National Health Service. Update 2010–2014) | National Plan | Cancer and non-cancer | Not applicable | None | Not applicable | |
| Analytical studies (n = 14) | Rocafort et al. [57] | 2006 | Equipos de soporte de cuidados paliativos y dedicación de los equipos de atención primaria a pacientes en situación terminal en sus domicilios (Palliative care support teams and the commitment of primary care teams to terminally ill patients in their homes) | Observational | Cancer and non-cancer | Multicentre observational study. | None | 19 |
| Ko W et al. [58] | 2013 | Awareness of general practitioners concerning cancer patients’ preferences for place of death: evidence from four European countries. | Observational | Cancer | Retrospective study | None | 28 | |
| Alonso et al. [59] | 1997 | Atención al paciente oncológico terminal en un distrito de atención primaria (Care for the terminal cancer patient in a primary care district) | Observational | Cancer | Unkown | None | Not applicable | |
| Canal et al. [60] | 2005 | Valoración de la implantación de un Programa Integral de Cuidados Paliativos. Visión retrospectiva 1995–1999 (Evaluation of the developement of a palliative car program. Review from 1995 to 1999) | Observational | Cancer | Retrospective and descriptive included in the ecologic category, by revising clinical records | Home care, inpatients units in long term and Inpatient Units in General Hospitals | 18 | |
| Simó et al. [61] | 2006 | Seguimiento de los pacientes atendidos conjuntamente por un equipo de Atención Primaria y su programa de Atención Domiciliaria y Equipos de Soporte (Follow-up of patients jointly cared for by a Primary Care unit, its Home Care program, and a Home Care Support Unit) | Observational | Multiple patologies: Dementia, neumologic diseases, neurologic diseases, cardiologic diseases, cancer, etcetera.. | Descriptive and retrospective study | Urban basic health area of Terrasa (Barcelona) | 21 | |
| Riera et al. [62] | 2008 | Resultados de la evaluación de un instrumento de trabajo interdisciplinar: trayectoria clínica de la Unidad de Cuidados Paliativos (Implementation of an interdisciplinary working tool: Palliative Care Unit clinical pathway. Results of its evaluation) | Observational | Advanced or terminal cáncer | A retrospective study of clinical records | “Hospital de la Esperanza”, Barcelona, Spain. | 22 | |
| Costa et al. [63] | 2012 | Demencia avanzada y cuidados paliativos, características sociodemográficas y clínicas (Advanced dementia and palliative care, socio-demographic and clinical characteristics) | Observational | Advanced dementia | Observational descriptive | Antic Hospital St. Jaume i Sta Magdalena (Mataró, Barcelona) | 22 | |
| De Santiago et al. [64] | 2012 | Un nuevo equipo de soporte hospitalario en el departamento de oncología de un hospital universitario: evaluación de eficacia inicial y eficiencia. (A new palliative care consultation team at the oncology department of a university hospital: an assessment of initial efficiency and effectiveness) | Experimental | Cancer and non-cancer | Retrospective study | University of Navarre Clinic, Oncology department. Pamplona, Spain | 22 | |
| Alonso-Babarro et al. [65] | 2013 | La asociación entre la muerte del paciente, utilzación de recursos hospitalarios y disponibilidad de servicios domiciliarios para pacientes con cáncer. (The association between in-patient death, utilization of hospital resources and availability of palliative homecare for cancer patients) | Experimental | Cancer | Population-based study | Alcobendas-San-Sebastian de Los Reyes and Alcala de Henares districts | 31 | |
| Vega et al. [66] | 2011 | Atención sanitaria paliativa y de soporte de los equipos de atención primaria en el domicilio (Palliative and support care at home in primary care) | Experimental | Cancer and non-cancer | Descriptive | Five spanish sentinel networks between October 2007 and march 2008, in five Autonomous regions: Comunidad Valenciana, La Rioja, Castilla y León, Asturias and Extremadura | 16 | |
| Prades et al. [67] | 2011 | Tratamiento multidisciplinar en cancer en España, o cuando la función crea el órgano: estudio de entrevista cualitativa. (Multidisciplinary cancer care in Spain, or when the function creates the organ: qualitative interview study) | Experimental | Cancer | Qualitative interview study with semi-structured, one-to-one interviews | Most populated regions of Spain, namely, Andalusia, Catalonia, Madrid, Galicia and Valencia | 19 | |
| Colchero et al. [68] | 2009 | Atención en pacientes oncológicos terminals en un distrito de atención primaria (Care of terminally ill oncology patients in an urban primary care district) | Experimental | Cancer | Transversal descriptive study | 2 hospital areas in the Seville’s primary attention district, 32 centres and 278 patients | 11 | |
| Agra et al. [69] | 2003 | Relación de la calidad de vida con diferentes modelos de atención domiciliaria en enfermos oncológicos terminales de un área sanitaria de Madrid (Relationship between quality of life and various models of home care in terminal oncology patients from a health area of Madrid) | Experimental | Cancer | A quasi-experimental prospective study | Area 4 of the “Imsalud” in Madrid | 25 | |
| Rihuete et al. [70] | 2005 | Atención integral al paciente oncológico y su familia desde una intervención multidisciplinar (Integral attention to oncology patients and their relatives from a multidisciplinary team) | Experimental | Cancer | Retrospective analysis of social interventions and a new methodology of proactive intervention, employing multidisciplinary clinic social sessions. And finally both interventions were compared | Unit of Oncology in the University of Salamanca | 14 |
(1) Protocol of the Hawker et al. appraisal tool [9] punctuates from 1 (very poor) to 4 (good) the following aspects: 1. Abstract and title: Did they provide a clear description of the study?; 2. Introduction and aims: Was there a good background and clear statement of the aims of the research?; 3. Method and data: Is the method appropriate and clearly explained?; 4. Sampling: Was the sampling strategy appropriate to address the aims?; 5. Data analysis: Was the description of the data analysis sufficiently rigorous?; 6. Ethics and bias: Have ethical issues been addressed, and what has necessary ethical approval gained? Has the relationship between researchers and participants been adequately considered?; 7. Results: Is there a clear statement of the findings?; 8. Transferability or generalizability: Are the findings of this study transferable (generalizable) to a wider population?; 9. Implications and usefulness: How important are these findings to policy and practice?