Table 1.

Four follow-up options for HEU children explored in surveys of parents/carers and health-care professionals.

Option	Description
Clinic contact	Annual follow-up visit at pediatric clinic with data (no names) sent to the NSHPC. Parents/carers would need to inform the clinic of contact detail changes
Telephone contact	Pediatric clinic staff would call parent/carer annually to collect brief information about the child’s general health. Responses entered on a form and sent to NSHPC (no names). Parents/carers would need to inform the clinic of contact detail changes
Postal contact	NSHPC would be provided with contact details of parent/carer by the clinic when the child was discharged from routine care. A short form on the child’s health would be sent to parent/carer annually for completion and return to NSHPC (no reference to HIV anywhere on the form or correspondence). Parents/carers would need to inform the NSHPC of contact detail changes
No direct contact	NSHPC uses child’s NHS number to link to routinely available health information. No further contact with clinic or NSHPC needed after child is discharged