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. Author manuscript; available in PMC: 2017 Jun 1.
Published in final edited form as: J Genet Couns. 2015 Nov 18;25(3):572–582. doi: 10.1007/s10897-015-9911-z

Table 1.

Common Themes and Representative Quotations Reflecting Perceived Benefits of Genetic Testing at 3 Time Points

Themes Representative Quotations
Personal Motivation
Time 1 (n= 112) Time 2 (n= 118) Time 3 (n= 93)
1. For cancer prevention “I will take better care of myself and seek my check-ups on a more regular schedule.”
(36 yr. old married woman with no cancer history); n= 72
“Protect myself, be on top of it.”
(28 yr. old single woman with no cancer history and positive test result); n= 73
“Taking action, if any- i.e. removal of ovaries, etc.”
(44 yr. old married woman with no cancer history and uninformative negative test result); n= 48
2. To acquire knowledge “Curiosity, my need to know will be satisfied.”
(37 yr. old single woman with history of breast cancer ); n= 47
“Gaining as much info as possible”
(49 yr. old married woman with no cancer history and positive test result); n= 53
“Part of personal informational knowledge”
(63 yr. old married man with history of both skin and breast cancer and uninformative negative test result); n= 47
3. To alleviate anxiety “Peace of mind”
(46 yr. old married woman with history of breast cancer); n= 18
“Know for sure, not have to worry continuously”
(46 yr. old married woman with no cancer history and positive test result); n= 15
“It let me breathe for a little bit.”
(37 yr. old single woman with history of breast cancer and uninformative negative test result); n= 12
4. For future planning “Being able to take appropriate measures like early child bearing”
(28 yr. old single woman with no cancer history); n= 6
“Have kids earlier”
(57 yr. old married woman with history of breast cancer and positive test result); n= 5
“Get your affairs in order. Make plans”
(40 yr. old married woman with no cancer history and uninformative negative result); n= 6
Altruistic Motivation
1. For family’s sake “I want to be tested so my daughters and granddaughters can be aware and be watched closely to prevent them from having breast and/or ovarian cancer.”
(Married woman with history of breast and ovarian cancer); n= 28
“Nothing for me, maybe my daughter, grandchildren”
(54 yr. old widowed woman with history of breast cancer and positive test result); n= 57
“Family members can take preventive measures”
(63 yr. old married woman with history of breast cancer and positive test result); n= 30
2. For science and research “Mainly for the good of genetic advances in understanding cancer”
(57 yr. old married woman with history of breast cancer); n= 15
“Cancer research, future cure”
(42 yr. old married woman with no cancer history and declined testing); n= 24
“Mostly, I did it for science. No benefits for me, but I didn’t expect any.”
(47 yr. old married woman with history of breast cancer and uninformative negative test result); n= 6

T1: Pre-Counseling; T2: Post-Counseling; T3:Post-Genetic Testing.