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. Author manuscript; available in PMC: 2016 May 27.
Published in final edited form as: J Fam Nurs. 2009 May 22;15(3):273–294. doi: 10.1177/1074840709337126

Table 1.

Caregiving Youth Research

Report Location Method Sample Age (Years) Family
Banks, et al. (2002) U.K. Survey and focus
  groups
31 11–17 Sibling or parent with mental or
  physical disability
Gates and Lackey (1998) U.S. Phenomenology 11 10–19 Adult with cancer
Forest Keenan et al. (2007) Scotland Interviews 33 9–28 Family with HD
Jacobson and Wood (2004) U.S. Survey of adults 15.7%, 51 adults (n = 8)
young caregivers
5–18 Adult with diabetes
Kelley, 2005 St. Lucia Ethnography 45 3.5–16 Frail elders in community
National Alliance for Caregiving (2005) U.S. Telephone interviews 213 8–18 Family member with Alzheimer
  disease, disease of heart, lung,
  or kidneys, arthritis, or diabetes
Sislowski (2006) U.S. Survey of public
  school children
6,210 6–12 grade Family member in need of special
  medical care
Valiakalayil et al. (2004) Canada Semistructured
  interview
13 13–18 Parent with schizophrenia