Table S1.

Demographics

	US, n				European Union, n
	Diagnoseda	Diagnosed advocacyb	Caregiverc	General populationd	Diagnoseda	Diagnosed advocacyb	Caregiverc	General populationd
Sex, %
Male	35	37	44	49	46	53	47	47
Female	65	63	56	51	54	47	53	53
Mean age, years, %e	52.9	45.8	48.7	41.9	39.6	44.7	42.7	43.8
18–24	4	6	5	13	5	9	6	8
25–34	15	24	24	21	22	33	22	17
35–44	14	19	14	18	24	27	29	26
45–54	19	18	15	26	23	17	26	26
55–64	27	22	24	22	18	11	13	23
65–74	15	9	14	0	7	2	4	0
75+	5	2	4	0	1	0	0	0
Country, %e
USA	100	100	100	100	0	0	0	0
UK	0	0	0	0	27	26	16	20
France	0	0	0	0	17	14	25	20
Germany	0	0	0	0	18	21	13	25
Spain	0	0	0	0	17	16	26	15
Italy	0	0	0	0	20	23	21	20

Notes:

^aDiagnosed with inflammatory bowel disease including Crohn’s disease and ulcerative colitis, rheumatoid arthritis, or psoriasis (moderate to severe only) for ≥6 months and had seen the doctor in past 12 months about the particular condition, or have had breast cancer, lung cancer, colorectal cancer, or non-Hodgkin’s lymphoma in past 2 years.

^bDiagnosed with any of the listed diseases and had heard of and participated in patient support groups.

^cHas a loved one with any of the listed diseases and is involved in decisions or dialogue about medication or therapy options.

^dIndividuals aged 18–64 years without any of the listed diseases or loved ones with these conditions.

^eNot all categories sum to 100% due to rounding.