. Author manuscript; available in PMC: 2017 Jun 1.

Published in final edited form as: Pediatr Crit Care Med. 2016 Jun;17(6):498–507. doi: 10.1097/PCC.0000000000000726

Table 2a.

ITQOL Family Burden Measures over Time

		Time point
	Reference	Baseline N=50	P-value^*	Month 3 N=48	P-value^*	Month 12 N=43	P-value^*	P-value^†
ITQOL: standardized score for Parent Impact - Emotion
Mean (SD)	92.1 (10.84)	90.5 (19.46)	0.575	71.1 (26.91)	<.001	76.8 (24.96)	<.001	0.119
ITQOL: standardized score for Parent Impact - Time
Mean (SD)	93 (10.92)	91.7 (16.60)	0.591	77.8 (26.64)	<.001	77.3 (27.07)	<.001	0.784
VABS Adaptive Behavior Composite Score
Mean (SD)	100 (15)	99.0 (15.32)		73.1 (27.19)		75.9 (25.67)

P-value from t-test comparing Family Burden measure to Reference.

^†

P-value from t-test comparing the change in Family Burden measure from month 3 to month 12.