. Author manuscript; available in PMC: 2017 Jun 1.

Published in final edited form as: Pediatr Crit Care Med. 2016 Jun;17(6):498–507. doi: 10.1097/PCC.0000000000000726

Table 2b.

CHQ Family Burden Measures over Time

		Time point
	Reference	Baseline N=27	P-value^*	Month 3 N=28	P-value^*	Month 12 N=34	P-value^*	P-value^†
CHQ: standardized score for Parent Impact - Emotion
Mean (SD)	80.3 (19.1)	74.4 (30.48)	0.322	44.6 (35.08)	<.001	52.2 (34.41)	<.001	0.440
CHQ: standardized score for Parent Impact - Time
Mean (SD)	87.8 (19.9)	87.2 (22.37)	0.898	45.6 (37.45)	<.001	55.9 (33.67)	<.001	0.007
CHQ: standardized score for Family Activities
Mean (SD)	89.7 (18.6)	87.0 (12.89)	0.293	61.2 (32.71)	<.001	63.1 (28.91)	<.001	0.697
VABS Adaptive Behavior Composite Score
Mean (SD)	100 (15)	107.0 (16.45)		64.1 (29.04)		66.1 (29.51)

P-value from t-test comparing Family Burden measure to Reference.

^†

P-value from t-test comparing the change in Family Burden measure from month 3 to month 12.

Note: one patient did not complete the month 3 CHQ assessment; N=28 for CHQ domains and N=29 for VABS.