Table 1.
Characteristics of all subgroups of caregivers
| All identified caregivers | All consent caregivers who received the additional caregiving questionnaire | |||||||
|---|---|---|---|---|---|---|---|---|
| Total | Nonconsent caregivers | Consent caregivers | p c | Total | Nonresponse caregivers | Response caregivers | p c | |
| Total (N, %) | 8443 (100 %)a | 3348 (39.7 %)a | 5095 (60.3 %)a | 2002 (39.3 %)a | 1037 (51.8 %)a | 965 (48.2 %)a | ||
| Socio-demographic characteristics | ||||||||
| Age, mean (SD) | 52.2 (9.68) | 52.3 (10.12) | 52.1 (9.39) | .566 | 52.3 (9.94) | 51.6 (9.98) | 53.1 (9.85) | .001 |
| Female | 75.9 % | 75.9 % | 75.9 % | .998 | 75.0 % | 74.8 % | 75.1 % | .878 |
| Partner, yes | 88.6 % | 89.9 % | 87.8 % | .004 | 87.9 % | 88.4 % | 87.3 % | .462 |
| Nr. of people in household, mean (SD) | 2.7 (1.15) | 2.7 (1.13) | 2.7 (1.16) | .968 | 2.7 (1.17) | 2.8 (1.18) | 2.7 (1.15) | .023 |
| Children aged 0–12, yes | 16.1 % | 16.3 % | 16.0 % | .694 | 16.3 % | 17.8 % | 14.6 % | .051 |
| Educational level | .000 | .038 | ||||||
| Primary | 30.9 % | 34.8 % | 28.2 % | 27.8 % | 25.8 % | 30.0 % | ||
| Secondary | 41.2 % | 39.1 % | 42.5 % | 41.4 % | 43.9 % | 38.7 % | ||
| Tertiary | 27.9 % | 25.9 % | 29.2 % | 30.8 % | 30.4 % | 31.3 % | ||
| Employed, yes | 71.7 % | 69.2 % | 73.2 % | .000 | 72.5 % | 75.9 % | 68.8 % | .000 |
| Voluntary work, yes | 36.9 % | 32.1 % | 40.1 % | .000 | 40.5 % | 42.2 % | 38.5 % | .094 |
| Caregiver health | ||||||||
| General health perception | .640 | .343 | ||||||
| Poor/fair | 13.3 % | 13.5 % | 13.2 % | 13.7 % | 12.5 % | 15.0 % | ||
| Good | 60.2 % | 60.8 % | 59.9 % | 59.4 % | 61.0 % | 57.6 % | ||
| Very good | 21.2 % | 20.6 % | 21.7 % | 21.0 % | 20.6 % | 21.5 % | ||
| Excellent | 5.2 % | 5.1 % | 5.3 % | 5.9 % | 5.9 % | 5.9 % | ||
| Somatisation, median (IQ range) | 16 (14–19) | 16 (14–19) | 16 (14–19) | .799 | 16 (14–19) | 16 (14–19) | 15 (14–19) | .025 |
| Caregiving situation | ||||||||
| Caregiver cares for: | ||||||||
| Spouse, yes (vs. no) | 11.1 % | 11.0 % | 11.2 % | .744 | 11.7 % | 9.4 % | 14.2 % | .001 |
| Parent (in-law), yes (vs. no) | 63.5 % | 62.6 % | 64.0 % | .199 | 62.9 % | 63.7 % | 62.0 % | .421 |
| Child (in-law), yes (vs. no) | 14.8 % | 13.5 % | 15.7 % | .006 | 15.5 % | 14.5 % | 16.7 % | .174 |
| Someone else, yes (vs. no) | 24.3 % | 24.9 % | 23.9 % | .289 | 24.8 % | 27.7 % | 21.8 % | .002 |
| More than 1 care recipient, yes | 28.0 % | 26.0 % | 29.3 % | .001 | 29.7 % | 31.5 % | 27.9 % | .079 |
| Living together with care recipient, yes | 20.5 % | 18.9 % | 21.6 % | .004 | 21.5 % | 18.4 % | 24.8 % | .001 |
| Caregiving duration (years), median (IQ range) | 4 (2–10) | 4 (1–10) | 5 (2–10) | .000 | 4 (2–10) | 4 (2–10) | 4 (2–10) | .812 |
| Hours of household care tasksb | .000 | .015 | ||||||
| 0 h | 22.0 % | 23.5 % | 21.0 % | 20.8 % | 21.7 % | 19.8 % | ||
| 1–4 h | 55.6 % | 56.4 % | 55.0 % | 54.5 % | 56.0 % | 52.8 % | ||
| 4–8 h | 11.2 % | 10.5 % | 11.7 % | 11.8 % | 11.7 % | 12.0 % | ||
| > 8 h | 11.2 % | 9.6 % | 12.3 % | 12.9 % | 10.6 % | 15.3 % | ||
| Hours of personal care tasksb | .000 | .375 | ||||||
| 0 h | 61.6 % | 65.5 % | 59.0 % | 59.3 % | 59.7 % | 59.0 % | ||
| 1–4 h | 27.9 % | 25.7 % | 29.2 % | 29.1 % | 30.0 % | 28.3 % | ||
| 4–8 h | 5.3 % | 4.4 % | 5.9 % | 5.5 % | 4.9 % | 6.1 % | ||
| > 8 h | 5.3 % | 4.4 % | 5.9 % | 6.0 % | 5.4 % | 6.6 % | ||
| Hours of other care tasksb | .000 | .000 | ||||||
| 0 h | 9.9 % | 11.7 % | 8.7 % | 9.4 % | 11.3 % | 7.5 % | ||
| 1–4 h | 69.5 % | 71.1 % | 68.5 % | 67.9 % | 69.5 % | 66.1 % | ||
| 4–8 h | 13.1 % | 11.5 % | 14.2 % | 13.8 % | 12.3 % | 15.2 % | ||
| > 8 h | 7.5 % | 5.7 % | 8.7 % | 8.9 % | 6.8 % | 11.2 % | ||
| Caregiving outcomes | ||||||||
| Caregiver burden, median (IQ range) | 10 (4–40) | 10 (2–36) | 20 (5–50) | .000 | 20 (5–50) | 11 (5–40) | 20 (5–50) | .007 |
| Caregiver satisfaction, median (IQ range) | 80 (50–90) | 75 (50–90) | 80 (50–90) | .000 | 80 (50–90) | 80 (50–90) | 80 (50–90) | .254 |
aNumber of respondents might vary between variables due to item non-response
bItem non-response for hours of household care, personal care, and other care was imputed using multiple imputation
cChi-square test is reported for all variables, except for age and nr. of people in household (Independent Sample T-test) and for somatization, caregiving duration, caregiver burden, and caregiver satisfaction (Mann-Whitney test)