Table 2. ENCR recommendation for optional set of data for CRs (2005) [16].
| Optional variables: THE PERSON | |
|---|---|
| Occupation | Since most cancer patients will be pensioned it should be the longest/last occupation if not a full occupational history is available |
| Industry | |
| Marital status | At the incidence date |
| Smoking status at diagnosis | Current, ex-smoker, non.smoker |
| Causes of death | Underlying, plus contributing (can be generated by record linkage) |
| Place of death | |
| THE TUMOUR | |
| Mode of detection | Especially if screen detected as part of programme |
| Therapy details | Type of surgery Chemotherapy regimes Radiation fields – and radiation type Specification of endocrine therapy Record whether the given therapy was intended to be curative or not |
| Differentiation | As indicated in the ICD-O manual |
| Grade | For bladder tumours – grade at date of diagnosis |
| Recurrence | dd/mm/yyyy |
| Metastasis | Site of metastasis and date of diagnosis (dd/mm/yyyy) or as minimum – local, regional or distant metastasis and date of diagnosis (dd/mm/yyyy) |
| TNM – full, FIGO, Ann-Arbor etc. | If the registry has easy access to the full TNM or other stage classifications these should be recorded |
| FOLLOW-UP | |
| Follow-up | Clinical follow-up information–quality of life |
| Rehabilitation | Active programme/activities should be recorded |
| Palliation | Palliative activities should be followed |