Table 6.
Study/disease state | Annual cost, mean and/or range∗ | Cost coverage | ||
---|---|---|---|---|
Home care | Home care + equipment | Out-of-pocket and/or lost wages | ||
Kaub-Wittemer et al. [25]/NMD | NR | NR | 3,624–29,942†
3,151–78,955‡ |
All were eligible for federally funded nursing care |
| ||||
Sevick and Bradham [28]/COPD, NMD/OHS | 116,222 | NR | 14,412§
0–545,449 |
NR |
| ||||
Moss et al. [29]/ALS | 208,738 | 15,829 0–367,925 |
91% privately insured Insurance covered >94% of expenses for 64% of patients |
|
| ||||
Bötel et al. [30]/SCI | 552,260 | 732,250 | NR | NR |
ALS, amyotrophic lateral sclerosis; COPD, chronic obstructive pulmonary disorders; NMD, neuromuscular disorders; NR, not reported; OHS, obesity hypoventilation syndrome; SCI, spinal cord injury. ∗Converted to US currency from publication date to September 29, 2014; †4 of 32 NIV users reported out-of-pocket expenses; ‡5 of 21 TV users reported out-of-pocket expenses; §mean change to gross salary.