Table 2.

CSER Consortium R-Awards

Project Name	Institutionsa	Project Goal
Challenges of Informed Consent in Return of Data From Genomic Research	Columbia University∗	developing a menu of approaches to deal with the challenges of informed consent for genomic research
Disclosing Genomic Incidental Findings in a Cancer BioBank: An ELSI Experiment	Mayo Clinic,∗ University of Minnesota, University of California, San Francisco	determining how to manage return of results and secondary findings to family members, including after the death of the research participant
Impact of Return of Incidental Genetic Test Results to Research Participants in the Genomic Era	Columbia University∗	investigating preferences of participants enrolled in genomic research about the disclosure of incidental genetic test results and the psychosocial and behavioral impact of these disclosures
Innovative Approaches to Returning Results in Exome and Genome Sequencing Studies	Seattle Children’s Hospital∗	comparing traditional results-disclosure sessions (with a genetic counselor and over the phone) with an innovative web-based tool
Presenting Diagnostic Results from Large-Scale Clinical Mutation Testing	Cleveland Clinic,∗ Mayo Clinic	examining participant and professional understandings of diagnostic results from large-scale clinical mutation testing and attitudes toward testing
Return of Research Results From Samples Obtained for Newborn Screening	Johns Hopkins University∗	evaluating current existing state policies regarding the storage of dried blood spots after newborn screening and associated research use to develop policy recommendations
Returning Research Results in Children: Parental Preferences and Expert Oversight	Boston Children’s Hospital∗	exploring research-participant preferences in the return of individual genomic research results and how this might be incorporated into registry and/or biobank research structure
Returning Research Results of Pediatric Genomic Research to Participants	Vanderbilt University,∗ McGill University, Baylor College of Medicine, University of Chicago	exploring legal issues raised by the return of genomic research results in minors
The Presumptive Case Again Returning Individuals Results in BioBanking Research	Children’s Mercy Hospital∗	analyzing claims that the return of bio-repository results is morally obligatory or permissible in genomic research

^aAsterisks denote lead institutions.