Table 1.
Participant characteristics including standard deviations (SD).
| Characteristic | Study Participants (n=13) | CrowdMed Users Eligible for Recruitment (n=546) | Study Participants vs. Eligible Users, P-value |
| Mean age, years (SD) | 42.8 (13.5) | 51.8 (16.5) | .08a |
| Sex (%) |
|
|
.28b |
| Female | 9 (69%) | 289 (52.9%) |
|
| Male | 4 (31%) | 257 (47.1%) |
|
| Ethnicity (%) |
|
|
.66b |
| Caucasian/white | 11 (85%) | 483 (88.5%) |
|
| Other | 2 (15%) | 63 (11.5%) |
|
| Mean years since disease onset (SD) | 6.7 (5.9) | 7.6 (10.8) | .46a |
| Mean months between case resolution date and claims data pull (SD) | 6.9 (2.8) | 8.0 (3.1) | .22a |
| Health care providers visited in the 12 months prior to using CrowdMed, self-reported in screener (%) |
|
|
N/A |
| 2-4 | 6 (46%) | N/A |
|
| 5-9 | 6 (46%) | N/A |
|
| 10+ | 1 (8%) | N/A |
|
a P-value of a Mann-Whitney U test
b P-value of Fisher’s exact test