Table 1.
Articles included in the study.
| ID | Full Reference | Type of Article |
|---|---|---|
| 1 | Aberg JA, Kaplan JE, Libman H, Emmanuel P, Anderson JR, Stone VE, et al. Primary Care Guidelines for the Management of Persons Infected with Human Immunodeficiency Virus: 2009 Update by the HIV Medicine Association of the Infectious Diseases Society of America. Clin Infect Dis. 2009 Sep 1;49(5):651–81. | Review Article |
| 2 | Allen D, Gregory J. The transition from children's to adult diabetes services: understanding the “problem”. Diabetic Medicine. 2009;26(2):162–6. | Primary Research |
| 3 | American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs. Pediatrics. 2002 Dec 1;110(Supplement 3):1304–6. | Theoretical/Opinion |
| 4 | Anderson BJ, McKay SV. Barriers to glycemic control in youth with type 1 diabetes and type 2 diabetes. Pediatric Diabetes. 2011;12(3pt1):197–205. | Review Article |
| 5 | Atun-Einy O, Scher A. Measuring developmentally appropriate practice in neonatal intensive care units. Journal of Perinatology. 2008 Mar;28(3):218–25. | Primary Research |
| 6 | Baglia J, Foster E, Dostal J, Keister D, Biery N, Larson D. Generating developmentally appropriate competency assessment at a family medicine residency. Fam Med. 2011 Feb;43(2):90–8 | Primary Research |
| 7 | Berg Kelly K. Sustainable transition process for young people with chronic conditions: a narrative summary on achieved cooperation between paediatric and adult medical teams. Child: Care, Health and Development. 2011;37(6):800–5. | Primary Research |
| 8 | Breakey VR, Blanchette VS, Bolton-Maggs PHB. Towards comprehensive care in transition for young people with haemophilia. Haemophilia. 2010;16(6):848–57. | Review Article |
| 9 | Callahan ST, Winitzer RFM, Keenan PR. Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Current Opinion in Pediatrics August 2001. 2001;13(4):310–6. | Theoretical/Opinion |
| 10 | Coleman R, Moore S. Future considerations in the transition of paediatric neuro-developmental patients to adult services. Australasian Journal of Neuroscience. 2006;15. | Theoretical/Opinion |
| 11 | Cooley WC, Sagerman PJ. Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home. Pediatrics. 2011 Jul 1;128(1):182–200. | Theoretical/Opinion |
| 12 | D'Agostino NM, Penney A, Zebrack B. Providing developmentally appropriate psychosocial care to adolescent and young adult cancer survivors. Cancer. 2011;117(S10):2329–34. | Theoretical/Opinion |
| 13 | Dovey-Pearce G, Doherty Y, May C. The influence of diabetes upon adolescent and young adult development: A qualitative study. British Journal of Health Psychology. 2007;12(1):75–91 | Primary Research |
| 14 | Dovey-Pearce G, Hurrell R, May C, Walker C, Doherty Y. Young adults' (16–25 years) suggestions for providing developmentally appropriate diabetes services: a qualitative study. Health & Social Care in the Community. 2005;13(5):409–19. | Primary Research |
| 15 | Drew S. “Having cancer changed my life, and changed my life forever”: survival, illness legacy and service provision following cancer in childhood. Chronic Illness. 2007 Dec 1;3(4):278–95. | Primary Research |
| 16 | Duncan RE, Gillam L, Savulescu J, Williamson R, Rogers JG, Delatycki MB. The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis. Familial Cancer. 2009 Sep 17;9(1):27–35. | Primary Research |
| 17 | Edidin JP, Ganim Z, Hunter SJ, Karnik NS. The Mental and Physical Health of Homeless Youth: A Literature Review. Child Psychiatry & Human Development. 2011 Nov 26;43(3):354–75. | Review Article |
| 18 | Ewing JE. Are we doing enough for young people with chronic illness? Australian and New Zealand Journal of Public Health. 2003;27(5):560–560. | Editorial/Commentary |
| 19 | Forman SF, Woods ER. Youth, risks, and chronic illness. Current Opinion in Pediatrics. 2011 Aug;23(4):365–6. | Editorial/Commentary |
| 20 | Fredericks EM, Dore-Stites D, Lopez MJ, Well A, Shieck V, Freed GL, et al. Transition of pediatric liver transplant recipients to adult care: Patient and parent perspectives. Pediatric Transplantation. 2011;15(4):414–24. | Primary Research |
| 21 | Herzer M, Goebel J, Cortina S. Transitioning cognitively impaired young patients with special health needs to adult-oriented care: collaboration between medical providers and pediatric psychologists. Current Opinion in Pediatrics October 2010. 2010;22(5):668–72. | Editorial/Commentary |
| 22 | Hilderson D, Moons P, Westhovens R, Wouters C. Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare. Rheumatology International. 2011 Dec 23;32(12):3887–96. | Primary Research |
| 23 | Hink H, Schellhase D. Transitioning Families to Adult Cystic Fibrosis Care. Journal for Specialists in Pediatric Nursing October 2006. 2006;11(4):260–3. | Theoretical/Opinion |
| 24 | Holzheimer, Mohay, Masters. Educating young children about asthma: comparing the effectiveness of a developmentally appropriate asthma education video tape and picture book. Child: Care, Health and Development. 1998;24(1):85–99. | Primary Research |
| 25 | Kennedy A, Sloman F, Douglass J, Sawyer S. Reply. Internal Medicine Journal. 2008;38(5):378–9. | Editorial/Commentary |
| 26 | Kennedy A, Sawyer S. Transition from pediatric to adult services: are we getting it right? Current Opinion in Pediatrics. Aug 2008;20(4):403–9. | Review Article |
| 27 | Levine L, Levine M. Health care transition in thalassemia: pediatric to adult-oriented care. Annals of the New York Academy of Sciences. 2010;1202(1):244–7. | Theoretical/Opinion |
| 28 | Losavio K. 11 Steps to a Successful Transition. The Hospitalist. March 2006. | Editorial/Commentary |
| 29 | Macfarlane A, Blum RW. Do we need specialist adolescent units in hospitals? BMJ. Apr 2001;322(7292):941–2. | Editorial/Commentary |
| 30 | McCurdy C, DiCenso A, Boblin S, Ludwin D, al et. There to here: young adult patients' perceptions of the process of transition from pediatric to adult transplant care. Progress in Transplantation. 2006 Dec;16(4):309–16. | Primary Research |
| 31 | McDonagh JE, Kelly DA. The challenges and opportunities for transitional care research. Pediatric Transplantation September 2010. 2010;14(6):688–700. | Theoretical/Opinion |
| 32 | McDonagh JE, Southwood TR, Shaw KL. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology. 2007 Jan 1;46(1):161–8. | Primary Research |
| 33 | McDonagh J. Getting it right for young people: developing adolescent rheumatology services. Future Rheumatology April 2008. 2008;3(2):133–41. | Theoretical/Opinion |
| 34 | McDonagh JE. Transition of care from paediatric to adult rheumatology. Arch Dis Child. 2007 Sep;92(9):802–7. | Review Article |
| 35 | McDonagh JE. Has the gap been bridged yet? Young people in paediatric and adult rheumatology. Rheumatology (Oxford). 2013 Jan 25;[Epub ahead of print]. | Editorial/Commentary |
| 36 | McDonagh JE, Kelly DA. Transitioning care of the pediatric recipient to adult caregivers. Pediatric Clinics of North America. 2003 Dec;50(6):1561–83. | Theoretical/Opinion |
| 37 | McDonagh JE. Growing up and moving on: Transition from pediatric to adult care. Pediatric Transplantation. 2005;9(3):364–72. | Theoretical/Opinion |
| 38 | Moons P, Hilderson D, Deyk KV. Implementation of Transition Programs can Prevent Another Lost Generation of Patients with Congenital Heart Disease. Eur J Cardiovasc Nurs. 2008 Dec 1;7(4):259–63. | Theoretical/Opinion |
| 39 | Moons P, Pinxten S, Dedroog D, Van Deyk K, Gewillig M, Hilderson D, et al. Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program. Journal of adolescent health. 2009;44(4):316–22. | Primary Research |
| 40 | Newman L, Birleson P. Mental health planning for children and youth: is it developmentally appropriate? Australas Psychiatry. 2012 Apr 1;20(2):91–7. | Theoretical/Opinion |
| 41 | Pahl E, Grady KL. Pediatric Heart Transplantation: Transitioning to Adult Care. ISHLTLinks. April 2012;11(3). | Theoretical/Opinion |
| 42 | Pyatak E. Participation in Occupation and Diabetes Self-Management in Emerging Adulthood. Journal of Occupational Therapy July. 2011;65(4):462–9. | Primary Research |
| 43 | Reiss J. Long-term outcomes for extremely low-birth-weight infants. JAMA. 2005 Nov 2;294(17):2168–9. | Editorial/Commentary |
| 44 | Robinson WL, Harper GW, Schoeny ME. Reducing Substance Use Among African American Adolescents: Effectiveness of School-Based Health Centers. Clinical Psychology: Science and Practice. 2003;10(4):491–504. | Primary Research |
| 45 | Rosen DS. Transition of young people with respiratory diseases to adult health care. Paediatric Respiratory Reviews. 2004;5(2):124–31. | Theoretical/Opinion |
| 46 | Sable C, Foster E, Uzark K, Bjornsen K, Canobbio MM, Connolly HM, et al. Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues A Scientific Statement From the American Heart Association. Circulation. 2011 Apr 5;123(13):1454–85. | Theoretical/Opinion |
| 47 | Saidi A, Kovacs AH. Developing a Transition Program from Pediatric- to Adult-Focused Cardiology Care: Practical Considerations. Congenital Heart Disease. 2009;4(4):204–15. | Theoretical/Opinion |
| 48 | Sawyer SM. In search of quality care for adolescents and young adults with chronic conditions. Journal of Paediatrics and Child Health. 2008;44(9):475–7. | Editorial/Commentary |
| 49 | Sawyer SM. Developmentally appropriate healthcare for young people with chronic illness: Questions of philosophy, policy, and practice. Pediatric Pulmonology. 2003;36(5):363–5. | Theoretical/Opinion |
| 50 | Sawyer SM, Aroni RA. Self-management in adolescents with chronic illness. What does it mean and how can it be achieved? Medical Journal of Australia. 2005 Oct 17;183(8):405–9. | Theoretical/Opinion |
| 51 | Sawyer SM, Macnee S. Transition to adult health care for adolescents with spina bifida: Research issues. Developmental Disabilities Research Reviews. 2010;16(1):60–5. | Theoretical/Opinion |
| 52 | Schrander-Stumpel CTRM, Sinnema M, Van den Hout L, Maaskant MA, Van Schrojenstein Lantman-de Valk HMJ, Wagemans A, et al. Healthcare transition in persons with intellectual disabilities: General issues, the Maastricht model, and Prader–Willi syndrome. American Journal of Medical Genetics Part C: Seminars in Medical Genetics. 2007;145C(3):241–7. | Theoretical/Opinion |
| 53 | Shaw KL, Southwood TR, McDonagh JE. Transitional care for adolescents with juvenile idiopathic arthritis: a Delphi study. Rheumatology. 2004 Aug 1;43(8):1000–6. | Primary Research |
| 54 | Srivastava SA, Elkin SL, Bilton D. The Transition of Adolescents with Chronic Respiratory Illness to Adult Care. Paediatric Respiratory Reviews. Dec 2012;13(4):230–235. | Theoretical/Opinion |
| 55 | Telfair J, Alleman-Velez PL, Dickens P, Loosier PS. Quality Health Care for Adolescents with Special Health-Care Needs: Issues and Clinical Implications. Journal of Pediatric Nursing. 2005 Feb;20(1):15–24. | Theoretical/Opinion |
| 56 | Towns SJ, Sawyer SM, Stephens L, Clarke SD, Bennett DL. Hospital based care of young people in Australia. International Journal of Adolescent Medicine and Health. 2007;19(3):317–23. | Theoretical/Opinion |
| 57 | Tuffrey C, Pearce A. Transition from paediatric to adult medical services for young people with chronic neurological problems. J Neurol Neurosurg Psychiatry. 2003 Aug 1;74(8):1011–3. | Editorial/Commentary |
| 58 | Wang G, McGrath BB, Watts C. Health Care Transitions Among Youth With Disabilities or Special Health Care Needs: An Ecological Approach. Journal of Pediatric Nursing. 2010 Dec;25(6):505–50. | Review Article |
| 59 | Weissberg-Benchell J, Wolpert H, Anderson BJ. Transitioning From Pediatric to Adult Care A new approach to the post-adolescent young person with type 1 diabetes. Dia Care. 2007 Oct 1;30(10):2441–6. | Editorial/Commentary |
| 60 | While A, Forbes A, Ullman R, Lewis S, Mathes L, Griffiths P. Good practices that address continuity during transition from child to adult care: synthesis of the evidence. Child: Care, Health and Development. 2004;30(5):439–52. | Review Article |
| 61 | White PH. On the road to adulthood for youth with rheumatic diseases: What health care professionals can do. Arthritis Care & Research. 2008;59(8):1054–7. | Editorial/Commentary |
| 62 | Underinsurance impacts teens' access to care. Contraceptive Technology Update. Jul 2009;30(7):76. | Theoretical/Opinion |