Table 2.

EQ-5D Completion Rates and Reasons for Non-completion

Status	Pre-implant (n=7353)	3 months (n=6599*)	6 months (n=5931*)
EQ-5D Completed	4005 (54%)	3258 (49%)	3088 (52%)
Too Sick**	1635 (22%)	431 (7%)	265 (5%)
Total ‘Completed’	5640 (77%)	3689 (56%)	3353 (57%)
Incomplete reasons
Coord did not contact/Admin	752	471	333
Unable to obtain F/U	—	348	410
Patient unavailable	36	22	10
Pt unwilling or unable	191	—	—
Pt not seen in clinic/hospital	315	205	199
Pt seen in clinic/hospital but EQ5D not done (due)	—	1277	1188
Other	77	155	34
Unknown	342	532	404
Total	1713 (23%)	2910(44%)	2578 (43%)

^*number of patients with the opportunity for follow-up where the patient has not died, been transplanted or recovered.

^**completed forms includes patients who filled out the EQ-5D and also those patients captured as ‘too sick’ to complete the EQ-5D. ‘Too sick’ patients were assigned a value of 0 for the VAS and ‘extreme problems’ for the 3 physical dimensions of Mobility, Self Care and Usual Activities