Table 3.

Key components of narrative themes

	Framing of health	Self-identity portrayed	Significance of health challenges	Strategies used to manage health	Interactions with healthcare professionals	Parental involvement	Framing of the future
Trying to forget	Healthy	Just like peers Cancer in the past	Downplay issues Medical issues constant sources of anxiety and depression	Avoid medical care Substance abuse and gaming	Avoid healthcare professionals	Parents not involved/survivors disengage parents	Focus on living a normal life that would 1 day include career and family
Trusting the system	Generally healthy, but with exceptions	Cancer taught them to appreciate life and put obstacles into perspective More mature than peers	Acknowledge medical and emotional issues Reassured by medical care	Rely on others to organize care Accept recommended screening and treatment	Listen and do not seek additional care, opinions, or information Have faith in health care professionals	Learn to be independent of parents	Focus on career, relationships, and hobbies
Being proactive about my health	Health is compromised	An experienced, knowledgeable, proactive patient	Experience multiple issues Worry and anxiety ever present	Seek out information Proactive in organization and management of care Engage in healthy lifestyle behaviors	Seek assistance from existing and new healthcare professionals Request information, investigations, and referrals	Independent of parents Limit discussions with parents to protect them from worry	Optimistic but expect health issues
Stumbling from one problem to the next	Cancer never ended	Embody cancer and refer to themselves as different than their peers	Medical challenges interfere with all aspects of daily life Emotional exhaustion related to chronic conditions Despair that late effects will continue	Trust and adhere to medical recommendations	Followed by numerous healthcare professionals Psychological support often ineffective	Feel abandoned or unsupported by parents who are no longer involved	Assume future will be truncated by health issues
Struggling to find my way	Health is a long list of late effects	Consumed by health issues	All-consuming Despair, frustration and confusion with health, disabilities, and healthcare professionals	Unable to self-manage health	Loss of close relationships with pediatric providers Negative interactions prevalent	Unable to manage independently their complex health needs Appreciated unwavering parental support but desired independence	Fear their future