Table 2.

Categories that differentiate caregivers of adherent and non-adherent CALHIV based on interviews with caregivers of CALHIV receiving antiretroviral treatment in five centers in different geographic regions of Brazil.

	Individual	Institutional	Social
Caregivers of adherents (N = 17)	Greater acceptance of own and/or child’s diagnosis Valorization of and availability for care delivery Belief in the efficacy of treatment and survival perspectives; invests in the child’s future (e.g., education) Acknowledgment of the relevance of disclosing the diagnosis to the child/adolescent Commitment to drug administration	Greater connection (exchanges) and dialogue between users and healthcare professionals resulting in the commitment of both Interaction between healthcare teams and therapeutic resources contributes to redefine the fatality of AIDS and enlarge the life perspectives of people living with HIV/AIDS (PLHIV)	Receives support from family and community networks Does not experience social isolation due to AIDS-related stigma
Caregivers of non-adherents (N = 52)	Difficulty to accept own and/or the child’s diagnosis Feelings of guilt for having transmitted HIV to the child Limited belief on ART effects and life and future perspectives Difficulty to disclose the diagnosis to the child/adolescent Difficulties to tolerate own treatment	Less connection (exchange) between users and healthcare professionals Limited interaction between professionals and users does not favor redefining the fatality of AIDS and contributes to the lack of life perspectives of PLHIV	Fragility of the potential family and community network support Experiences of social isolation due to AIDS-related stigma