Table 2.
Examples of multi-country liver disease registries
| Name | Founding country | Participating countries | Size (∼) | Website |
|---|---|---|---|---|
| Hepatitis delta registry | Germany | 11 | UK | http://hepatitis-delta.org/ |
| DILI registry | Spain | 1 | 901 cases 864 patients | http://www.spanishdili.uma.es/index.php/es/ |
| Spanish Latin American DILI Network32 | Spain | 9 | 190 cases 181 patients | – |
| PLD registry | The Netherlands | 4 | >500 patients | – |
| European liver transplant registry10 | France/Germany/UK | 27 | 106,849 patients 118,441 LTx | http://www.eltr.org/ |
| International PSC Study Group9 | Norway | >17 | 7312 patients | http://www.ipscsg.org/ |
| Autoimmune pancreatitis33 | USA/Japan | 10 | 1064 patients | – |
| International PBC Study group18,19 | The Netherlands | 20 | >6000 patients | http://globalpbc.com/ |
DILI: drug-induced liver disease; LTx: liver transplantation; PBC: primary biliary cirrhosis; PLD: polycystic liver disease; PSC: primary sclerosing cholangitis.