TABLE 2. Summary of the Subcategories, Categories, and Main Area Describing Critical Incidents in Daily Life Related to Inflammatory Bowel Diseasea.
| Main Area | Category | Subcategory |
|---|---|---|
| The bowels rule life | Losing control of the bowel | Being in a hurry and not reaching the toilet in time (39) Having to go to the toilet frequently (32) Having to sit on the toilet for a long time (8) Not having access to toilets with privacy (9) |
| Having a body that smells | Smelling of feces (7) Receiving and living with a stoma (2) Leakage of stool, pus, and blood (8) |
|
| Being unable to meet own and others' expectations | Being hospitalized (2) Making unreasonable demands and exposing one's children to risks (5) Being forced to turn down job offers (7) Unable to perform one's work (14) Being a burden to relatives/friends (11) Not being able to perform certain activities (19) Not being able to plan activities in advance and making definite plans (23) |
|
| Not being believed or seen | Not receiving the care considered necessary (12) Being met by incomprehension on the part of authorities (11) Being denied use of a toilet (3) Not being visited when hospitalized (2) |
|
| Experiencing frustration due to side effects and ineffective treatment | Side effects of treatment (5) Experiencing that treatment does not work (3) Need to undergo extensive examinations (2) |
aNumber of incidents in parentheses, a total of 224 critical incidents.