. Author manuscript; available in PMC: 2016 Jul 1.

Published in final edited form as: Acad Pediatr. 2014 Jan-Feb;14(1):92–100. doi: 10.1016/j.acap.2013.10.001

Table 2.

Adjusted Prevalence Rate Ratio of Experiencing Selected Measures of Family Burden in 2009–2010 Compared to 2001, 2001, and 2009–2010 National Surveys of Children With Special Health Care Needs

CSHCN and Family Characteristics	Paid ≥ $1000 Out of Pocket in the Past 12 Months (n = 77,147)			Family Experienced Financial Problems (n = 77,806)			Family Experienced Financial Problems (n = 77,806)			Family Members Spent >10 Hours Providing or Coordinating Care in the Past Week (n = 75,502)			Any Financial or Nonfinancial Burden^† (n = 74,324)			Paid ≥3% of Income in the Past 12 Months (n = 76,769)

		95% CI			95% CI			95% CI			95% CI			95% CI			95% CI

	RR	Upper	Lower	RR	Upper	Lower	RR	Upper	Lower	RR	Upper	Lower	RR	Upper	Lower	RR	Upper	Lower
Total	2.19^*	2.07	2.33	1.00^*	0.95	1.05	0.75^*	0.72	0.78	0.81^*	0.76	0.87	1.04^*	1.01	1.07	1.35^*	1.27	1.44
Insurance type
Private insurance (2009–2010 vs 2001)	2.50^*	2.34	2.66	1.13^*	1.06	1.21	0.72^*	0.68	0.77	0.79^*	0.70	0.89	1.18^*	1.14	1.23	1.73^*	1.61	1.86
Public insurance (2009–2010 vs 2001)	1.47^*	1.18	1.84	0.85^*	0.76	0.94	0.75^*	0.70	0.81	0.79^*	0.71	0.88	0.83^*	0.79	0.88	0.80^*	0.69	0.92
Both private and public insurance (2009–2010 vs 2001)	1.44^*	1.14	1.83	0.82^*	0.70	0.96	0.78^*	0.69	0.88	0.92	0.78	1.08	0.87^*	0.79	0.95	0.97	0.78	1.21
Other comprehensive insurance (2009–2010 vs 2001)	1.90^*	1.00	3.60	0.68	0.43	1.06	0.54^*	0.36	0.79	0.34^*	0.18	0.62	0.96	0.72	1.29	2.31^*	1.24	4.29
Uninsured (2009–2010 vs 2001)	1.49^*	1.20	1.85	1.07	0.90	1.26	0.88	0.73	1.07	0.80	0.57	1.12	1.11^*	1.01	1.23	1.06	0.86	1.30
Activity limitations
Never/rarely affected (2009–2010 vs 2001)	3.15^*	2.80	3.54	1.05	0.91	1.21	0.57^*	0.50	0.65	0.62^*	0.51	0.75	1.21^*	1.13	1.29	1.68^*	1.47	1.92
Somewhat/sometimes affected (2009–2010 vs 2001)	2.32^*	2.12	2.54	0.98	0.90	1.06	0.71^*	0.66	0.76	0.71^*	0.62	0.80	1.01	0.96	1.05	1.45^*	1.32	1.60
Usually/always/a great deal affected (2009–2010 vs 2001)	1.53^*	1.40	1.68	1.00	0.93	1.08	0.85^*	0.81	0.90	0.93	0.85	1.02	0.99	0.96	1.03	1.12^*	1.02	1.24
Sex
Male (2009–2010 vs 2001)	2.19^*	2.03	2.36	1.04	0.97	1.11	0.77^*	0.73	0.81	0.83^*	0.76	0.91	1.05^*	1.01	1.08	1.36^*	1.25	1.47
Female (2009–2010 vs 2001)	2.20^*	2.02	2.41	0.95	0.87	1.02	0.72^*	0.68	0.77	0.77^*	0.70	0.86	1.04^*	1.00	1.08	1.35^*	1.23	1.49
Age
0–5 y (2009–2010 vs 2001)	1.86^*	1.64	2.13	0.86^*	0.77	0.97	0.70^*	0.65	0.75	0.76^*	0.68	0.86	0.91^*	0.86	0.96	1.08	0.94	1.24
6–11 y (2009–2010 vs 2001)	2.25^*	2.04	2.47	1.05	0.97	1.14	0.75^*	0.71	0.80	0.83^*	0.74	0.93	1.02	0.98	1.07	1.37^*	1.24	1.52
12–17 y (2009–2010 vs 2001)	2.30^*	2.11	2.50	1.02	0.95	1.10	0.79^*	0.74	0.85	0.83^*	0.73	0.94	1.15^*	1.10	1.20	1.48^*	1.35	1.63
Race/ethnicity
Hispanic (2009–2010 vs 2001)	1.73^*	1.38	2.17	0.99	0.85	1.15	0.72^*	0.65	0.80	1.00	0.82	1.22	0.97	0.89	1.05	1.04	0.86	1.25
Non-Hispanic white (2009–2010 vs 2001)	2.29^*	2.15	2.44	1.01	0.96	1.07	0.75^*	0.72	0.79	0.78^*	0.72	0.85	1.09^*	1.06	1.13	1.50^*	1.40	1.62
Non-Hispanic black (2009–2010 vs 2001)	2.52^*	1.93	3.30	1.02	0.87	1.20	0.77^*	0.68	0.87	0.78^*	0.66	0.93	0.93	0.85	1.02	1.11	0.9	1.36
Non-Hispanic other (2009–2010 vs 2001)	1.71^*	1.33	2.19	0.91	0.74	1.11	0.77^*	0.66	0.90	0.72^*	0.55	0.92	0.97	0.87	1.07	1.08	0.85	1.37
Poverty level^‡
≤100% FPL (2009–2010 vs 2001)	1.28	0.97	1.67	0.85^*	0.76	0.95	0.74^*	0.67	0.81	0.85^*	0.74	0.96	0.86^*	0.81	0.92	0.70^*	0.62	0.80
>100–≤200% FPL (2009–2010 vs 2001)	2.02^*	1.74	2.34	0.91^*	0.82	1.00	0.71^*	0.65	0.78	0.70^*	0.61	0.80	0.89^*	0.84	0.95	1.40^*	1.24	1.58
>200–≤400% FPL (2009–2010 vs 2001)	2.45^*	2.22	2.70	1.10^*	1.02	1.19	0.77^*	0.71	0.83	0.86^*	0.75	0.98	1.11^*	1.06	1.17	2.10^*	1.90	2.33
>400% FPL (2009–2010 vs 2001)	2.25^*	2.06	2.47	1.17^*	1.03	1.33	0.79^*	0.72	0.86	0.87	0.73	1.04	1.24^*	1.18	1.31	1.28^*	1.08	1.52

Estimates are weighted to be representative of all non-institutionalized CSHCN aged 0 to 17 years in the US. CSHCN indicates children with special health care needs; RR, relative risk; CI, confidence interval; and FPL, federal poverty level.

Statistically significant changes from 2001 to 2009–2010.

^†

Any of the following 4 burdens: paid ≥1000 out of pocket in the past 12 months; family experienced financial problems; family members quit/cut back work; or family members spent >10 hours providing or coordinating care in the past week.

^‡

The FPL for a family of four was $17,650 in 2001 and $22,050 in 2009–10.