Table 1.
Details of first-degree relatives of patients with RA who participated in the interviews
| Participant number | Gender | Age | Ethnicity | Relation to patient with RA | Experience of testing | Self-reported musculoskeletal symptoms | Interview country |
|---|---|---|---|---|---|---|---|
| Participant 1 | Female | 36 | White British | Daughter | None | None | UK |
| Participant 2 | Female | 42 | White British | Daughter | None | Previous septic arthritis | UK |
| Participant 3 | Male | 35 | White British | Son | None | None | UK |
| Participant 4 | Male | 67 | White British | Brother | None | None | UK |
| Participant 5 | Male | 31 | White British | Son | Reports having had a ‘genetic test’ for RA (performed by family physician) | None | UK |
| Participant 6 | Female | 23 | White British | Daughter | None | None | UK |
| Participant 7 | Female | 30 | White British | Daughter | None | Ankle pain and intermittent ankle swelling attributed by patient to a previous ‘ankle dislocation’ | UK |
| Participant 8 | Female | 39 | White British | Daughter | Rheumatoid factor previously measured | Elbow pain | UK |
| Participant 9 | Female | 54 | White British | Sister | None | Finger pain | UK |
| Participant 10 | Female | 35 | White British | Daughter | None | ‘Inflamed knee’ during pregnancy | UK |
| Participant 11 | Female | 44 | White British | Sister and daughter | None | Back pain | UK |
| Participant 12 | Female | 44 | White British | Sister | None | Finger pain | UK |
| Participant 13 | Female | 41 | White British | Sister and daughter | Rheumatoid factor previously measured by family physician | Finger pain, stiffness and swelling | UK |
| Participant 14 | Female | 60 | White | Daughter | Has had ‘blood tests’ (participant unsure which) | Has a diagnosis of osteoarthritis | UK |
| Participant 15 | Female | 29 | White British | Daughter | None | None | UK |
| Participant 16 | Female | 40 | White British | Daughter | None | None | UK |
| Participant 17 | Female | 41 | Asian (UK born) | Daughter | None | None | UK |
| Participant 18 | Female | 28 | White British | Daughter | None | None | UK |
| Participant 19 | Male | 42 | Chinese | Son | None | None | UK |
| Participant 20 | Female | 25 | White British | Daughter | None | None | UK |
| Participant 21 | Female | 41 | White British | Daughter | None | Had previous joint swelling in wrists and hands | UK |
| Participant 22 | Female | 32 | White British | Sister | None | None | UK |
| Participant 23 | Female | 44 | White British | Daughter | None | None | UK |
| Participant 24 | Male | 47 | White British | Son | None | None | UK |
| Participant 25 | Female | 29 | White German | Daughter | None | None | Germany |
| Participant 26 | Female | 37 | White German | Daughter | None | None | Germany |
| Participant 27 | Female | 51 | White German | Daughter | None | None | Germany |
| Participant 28 | Female | 21 | White Austrian | Daughter | None | None | Austria |
| Participant 29 | Male | 33 | White Austrian | Son | None | None | Austria |
| Participant 30 | Female | 65 | White Austrian | Sister | None | None | Austria |
| Participant 31 | Female | 36 | White Austrian | Sister | Reports having had a blood test | None | Austria |
| Participant 32 | Male | 37 | White Austrian | Son | None | None | Austria |
| Participant 33 | Male | 37 | White Austrian | Son | None | None | Austria |
| Participant 34 | Female | 33 | White Austrian | Daughter | None | None | Austria |
RA, rheumatoid arthritis.