Table 2.
Registry name (common abbreviation), year of establishment | Accessibility | Patient-level data availability | Treatments | Outcomes |
---|---|---|---|---|
Hong Kong Renal Registry (HKRR), 1995 | + | + | +++ | +++ |
Korean Renal Registry, 1985 | ++ | ++ | +++ | +++ |
Malaysian National Renal Registry (NRR), 1993 | ++ | +++ | +++ | +++ |
Shanghai Dialysis Registry, 1996 | + | + | ++ | +++ |
Singapore Renal Registry, 2001 | +++ | ++ | +++ | +++ |
Taiwan Renal Registry Data System (TWRDS), 1987 | + | + | +++ | + |
Thailand Renal Replacement Therapy Registry (TRT), 1997 | ++ | + | +++ | + |
Accessibility: +++ (good): information including annual reports, publications and aggregate data accessible via website, publicly available records, or with assistance from registry staff. ++ (moderate): information in local language only or limited publicly available information including on website; with additional searches, basic information may be available in reports or in published research; more information may be accessible via third-party collaborators (e.g. registry researchers or local academics). + (limited/unclear): very limited information available publicly or unclear.
Patient-level data availability: +++: available to external researchers directly or through application and review; may include usage fee. ++: conditional access, e.g. via third-party collaborators. +: not available to external researchers or access process unclear.
Treatments: +++: submodality available. ++: modality available but not submodality. +: modality not available or availability unclear.
Outcomes: +++: mortality/survival and/or hospitalization/complication data available. ++: mortality/survival or hospitalization/complication data not reported; surrogates such as laboratory result data reported. +: no reported outcome or surrogate data or availability unclear.