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. 2015 Nov 18;1(3):165–177. doi: 10.1159/000441816

Table 2.

Features of dialysis registries in Asia (modified from [21])

Registry name (common abbreviation), year of establishment Accessibility Patient-level data availability Treatments Outcomes
Hong Kong Renal Registry (HKRR), 1995 + + +++ +++
Korean Renal Registry, 1985 ++ ++ +++ +++
Malaysian National Renal Registry (NRR), 1993 ++ +++ +++ +++
Shanghai Dialysis Registry, 1996 + + ++ +++
Singapore Renal Registry, 2001 +++ ++ +++ +++
Taiwan Renal Registry Data System (TWRDS), 1987 + + +++ +
Thailand Renal Replacement Therapy Registry (TRT), 1997 ++ + +++ +

Accessibility: +++ (good): information including annual reports, publications and aggregate data accessible via website, publicly available records, or with assistance from registry staff. ++ (moderate): information in local language only or limited publicly available information including on website; with additional searches, basic information may be available in reports or in published research; more information may be accessible via third-party collaborators (e.g. registry researchers or local academics). + (limited/unclear): very limited information available publicly or unclear.

Patient-level data availability: +++: available to external researchers directly or through application and review; may include usage fee. ++: conditional access, e.g. via third-party collaborators. +: not available to external researchers or access process unclear.

Treatments: +++: submodality available. ++: modality available but not submodality. +: modality not available or availability unclear.

Outcomes: +++: mortality/survival and/or hospitalization/complication data available. ++: mortality/survival or hospitalization/complication data not reported; surrogates such as laboratory result data reported. +: no reported outcome or surrogate data or availability unclear.