TABLE 3.

Consent for Expanded NBS With WGS

	Participant Response
Consent not necessary	“They’re already there, the baby’s already in the nursery getting the prick done, already having that sample going on a piece of paper. Why not run the rest of it that’s going to tell me more about my child?” (Larisa, AMC)
Consent necessary to protect privacy	“I think it would have to be stricter regulations with it because it’s way more invasive to privacy than the newborn screening that’s current.” (Anna, PID)
Consent necessary due to uncertainty of results	“…so I would definitely be concerned if it falls under the category of newborn screening program and it’s not something that you have to consent to… maybe this would be very helpful information, but it’s still very speculative.” (Adelle, AMC)
Consent necessary if returning results relevant only in adulthood	“I think once you go beyond the kind of childhood things, I think then those should be more optional or not mandatory but keep the childhood type things mandatory.” (David, PID)
Allowing parents to opt-in or opt-out of WGS test components	“I think it would be nice if they could keep the part that’s mandatory, mandatory and then this [other stuff] is like an option, you know, like, ‘do you want to have this information for the future or not?’ type of thing.” (Marsha, PID)