TABLE 1—

Characteristics of and Numbers of Deaths in the Intellectual Disability and Matched Control Groups: Selected UK General Practices, 2009–2013

		Intellectual Disability Group		Control Group
Characteristic of Intellectual Disability Adult	Mean Age, y (SD)	No.	Deaths, No. (%)	No.	Deaths, No. (%)
Total	39.9 (16.2)	16 666	656 (3.94)	113 562	1 358 (1.20)
Gender
Male	41.3 (16.4)	6 989	291 (4.16)	47 587	538 (1.13)
Female	38.8 (15.9)	9 677	365 (3.77)	65 975	820 (1.24)
Age, y
18–34	24.2 (5.1)	6 981	48 (0.69)	46 939	69 (0.15)
35–54	44.2 (5.4)	6 283	167 (2.66)	43 123	276 (0.64)
≥ 55	64.0 (7.1)	3 402	441 (12.96)	23 500	1 013 (4.31)
Down syndrome
Yes	39.1 (14.4)	1 793	118 (6.58)	12 226	92 (0.75)
No	40.0 (16.4)	14 873	538 (3.62)	101 336	1 266 (1.25)
High level of support needsa
Yes	41.4 (16.4)	3 263	194 (5.94)	22 298	302 (1.35)
No	39.5 (16.1)	13 403	462 (3.45)	91 264	1 056 (1.16)
Communal/shared accommodations
Yes	47.2 (15.7)	3 392	265 (7.81)	23 117	416 (1.80)
No	38.0 (15.8)	13 274	391 (2.90)	90 445	942 (1.04)
Autism spectrum disorder
Yes	30.5 (13.3)	1 532	15 (0.98)	10 374	44 (0.42)
No	40.8 (16.1)	15 134	641 (4.24)	103 188	1 314 (1.27)
Epilepsy
Yes	41.0 (15.3)	2 884	167 (5.79)	19 705	205 (1.04)
No	39.6 (16.3)	13 782	489 (3.55)	93 857	1 153 (1.23)
Any subgroup categorizationb
Yes	40.6 (16.4)	8 541	446 (5.22)	58 194	703 (1.21)
No	39.1 (16.0)	8 125	210 (2.58)	55 368	655 (1.18)

^aClassified by a general practitioner as having severe or profound intellectual disability or has ≥ 2 of the following: epilepsy, cerebral palsy or significant mobility problem (wheelchair use or greater), severe visual impairment, severe hearing impairment, continence problem, or use of percutaneous endoscopic gastrostomy feeding.

^bDown syndrome, high level of support needs, communal/shared accommodations, autism, or epilepsy.