Table 3.

Open-ended comments

Quality Improvement suggestions:

It looks like the teaching to parents is not heard/understood by most. Most of the parents    I see have low health literacy levels.

Sometimes families understand and sometimes they are clueless- not sure what makes    the difference but I suspect it is the handout?

Still not clear to the outpatient providers what education is given to families and what to    do with the diagnosis when it is received.

Support of program:

This piece of information if very helpful, and I use it almost daily. With our patient    population I can't imagine not having this screening

Having the diagnosis helps me in making sure to avoid triggers

Love it!

I think there should be universal screening