| Rheumatoid Arthritis |
Integrating Patient- Centered Outcomes in Arthritis Clinical Care
Principal Investigator:
Clifton Bingham, MD
Johns Hopkins University |
To examine the feasibility and impact of integrating expanded PRO assessments, including PROMIS measures, into the clinical care of patients with rheumatoid arthritis |
PROMIS questionnaires at the time of clinical encounter Provision of PROMIS data to patients with RA and their clinicians at time of clinical assessment Post visit surveys and qualitative studies to elicit feedback on feasibility, personal and clinical relevance and utility in health decision-making Content validation and responsiveness evaluation of PROMIS measures
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| Vasculitis |
Patient-Reported Outcomes for Vasculitis
Principal Investigator:
Peter A. Merkel, MD, MPH
University of Pennsylvania |
To investigate the feasibility and validity of using PROMIS instruments to measure disease activity in vasculitis |
Develop and implement a set of PROMIS measures in vasculitis Evaluate the use of PROMIS tools in vasculitis through testing within a longitudinal cohort that collects extensive other outcome data and within randomized clinical trials testing new therapies for vasculitis Comparison of the feasibility and usefulness of PROMIS short forms and CAT instruments
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| Chronic disease |
Creation of the Person- Centered Wellness HomeTM Across the Life Course
Principal Investigator:
Thelma Mielenz, PhD
Columbia University |
To create a new public health framework called “the person- centered wellness home”TM
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Develop Personal Health Records to share with a physician in a patient-centered medical home Randomized control trial designed to assess wellness self- coaching as a booster to the Chronic Disease Self- Management Program Measure behavior change using PROMIS and other measures Utilize the PROMIS Assessment Center Lite Develop a new wellness framework called the person- centered wellness home TM which complements the current patient- centered medical model
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| Substance Use |
Evaluating PROMIS Instruments and Methods for PCOR: Substance Use Treatment
Principal Investigator:
Paul A. Pilkonis, PhD
University of Pittsburgh |
To demonstrate the methodological advantages, ease of use, and value and efficiency of PROMIS in comparative effectiveness research and clinical care regarding substance use |
Deploy a PROMIS tool for patients at intake and one- and three-month follow-up assessments Qualitative interviews with a subsample of patients (n = 50) at intake and three-month follow-up Qualitative interviews with clinicians about the value of integrating PROMIS into the treatment setting at intake and three-month follow-up
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