Table 1.
Sensitivity of the ascertainment of incident cancer cases on the registry from hospital data by demographic and tumour characteristics, 2005–2009
| Variable | Registry cases | Ascertained in the hospital data* | Sensitivity (%) | 95% CL |
|---|---|---|---|---|
| Year of diagnosis | ||||
| 2005 | 973 | 850 | 87.4 | (85.1 to 89.4) |
| 2006 | 926 | 827 | 89.3 | (87.1 to 91.2) |
| 2007 | 1034 | 907 | 87.7 | (85.6 to 89.7) |
| 2008 | 1001 | 878 | 87.7 | (85.5 to 89.7) |
| 2009 | 1005 | 860 | 85.6 | (83.2 to 87.7) |
| Age at diagnosis (years) | ||||
| <50 | 246 | 221 | 89.8 | (85.4 to 93.3) |
| 50 to 59 | 591 | 519 | 87.8 | (84.9 to 90.3) |
| 60 to 69 | 1087 | 973 | 89.5 | (87.5 to 91.3) |
| 70 to 79 | 1487 | 1338 | 90.0 | (88.3 to 91.5) |
| 80+ | 1528 | 1271 | 83.2 | (81.2 to 85.0) |
| Remoteness of residence | ||||
| Major city | 3447 | 3078 | 89.3 | (88.2 to 90.3) |
| Inner regional | 1091 | 909 | 83.3 | (81.0 to 85.5) |
| Outer regional | 366 | 305 | 83.3 | (79.1 to 87.0) |
| Remote and very remote | 35 | 30 | 85.7 | (69.7 to 95.2) |
| Primary site | ||||
| Pancreas (C25) | 4211 | 3733 | 88.6 | (87.7 to 89.6) |
| Extrahepatic bile duct and ampulla (C24) | 542 | 427 | 78.8 | (75.1 to 82.2) |
| Duodenum (C17.0) | 186 | 162 | 87.1 | (81.4 to 91.6) |
| Histology type | ||||
| Adenocarcinoma | 2629 | 2388 | 90.8 | (89.7 to 91.9) |
| Cholangiocarcinoma | 193 | 131 | 67.9 | (60.8 to 74.4) |
| Neuroendocrine | 144 | 118 | 81.9 | (74.7 to 87.9) |
| Other | 45 | 40 | 88.9 | (75.9 to 96.3) |
| Unspecified | 1928 | 1645 | 85.3 | (83.7 to 86.9) |
| Extent of disease | ||||
| Localised | 839 | 805 | 95.9 | (94.4 to 97.2) |
| Regional | 907 | 846 | 93.3 | (91.4 to 94.8) |
| Distant | 2082 | 1863 | 89.5 | (88.1 to 90.8) |
| Unknown | 1111 | 808 | 72.7 | (70.0 to 75.3) |
| Best basis of diagnosis† | ||||
| Histopathology | 2761 | 2510 | 90.9 | (89.8 to 92.0) |
| Cytology | 481 | 407 | 84.6 | (81.1 to 87.7) |
| Clinical | 1507 | 1387 | 92.0 | (90.6 to 93.4) |
| Death certificate only | 187 | 18 | 9.6 | (5.8 to 14.8) |
| Resection status | ||||
| No resection | 4209 | 3607 | 85.7 | (84.6 to 86.7) |
| Resection | 730 | 715 | 97.9 | (96.6 to 98.8) |
| Overall | 4939 | 4322 | 87.5 | (86.6 to 88.4) |
*Registry cases with a diagnosis of pancreatic or periampullary cancer recorded in an admission. We did not measure the concordance of variables between the two data sources.
†Cases (n=3) notified by postmortem only are not shown. Cases notified to the New South Wales Central Cancer Registry (NSW CCR) by death certificate only were unavailable for 2009.22 Death certificate-only notified cases were 4.8% (187/3934) of cases for the 2005–2008 period.