Box.

Qualitative Responses—Chart Card Experience

Timeliness	“It helped me get straight through, fast.”
	“Very helpful, fast, accurate, and informative. Speeds up the process!”
Improved communication	“Less questioning while in pain. The information was readily available.”
	“I handed the card to the doctor and they could find out about my son's illness in a more detailed way.”
	“Wherever you go, they would know that you have sickle cell disease because you have the card. [I have been asked before how long] have you had sickle cell disease!”
	“It was a way of helping when doctors ask questions and there was something I couldn't remember.”
Improved attitudes	“Sometimes I think they don't believe me that my girls have sickle cell (patients are Hispanic). If the card could tell them, that would help a lot.”
	“Chart Card helps dispel biased notions about sickle cell disease, that they are drug users. Legitimizes you.”
Improved efficacy in health care	“It helped me because he's (my) first child with sickle cell disease. I didn't always know the names of medicines that doctors needed to know. I didn't know exact antibiotic, or dose. Also, labs in the past were on the card.”
	“[Before] I had no control, I didn't know. With the card, I knew the answers and medical history were right there.”
	“It made me feel safer.”
	“It's a plan everyone should have, just in case you're incoherent—it's there in your wallet, bam.”
	“I knew they had all the information...knew medicines and labs”
Negative aspects of Chart Card program	“They discontinued it!”
	“The ER staff was not always aware of what to do with it.”
	“I had to give up the card.”