Table 2.
Summary of interview topics
| Interview 1 topics | Interviews 2 and 3 topics |
|---|---|
| Joining the trial • Reasons for joining the trial • Understanding of trial purpose, equipoise and different trial arms • Preferences for and responses to trial arm allocation • Understanding of and views on randomisation • Experience of receiving and accessing information on the trial Participating in the trial • IG: Experiences of daily injections (administering injections, side effects, support, continuation) • CG: Views on daily injections • Experience of attending clinics • Experience with and views on data collection processes • Perceived benefits or disadvantages of being on the trial and suggestions for improvement Treatment experiences and quality of life • Length of time receiving treatment (e.g., chemotherapy) • Understanding of treatment(s) • Responses to treatment(s) (side effects and symptom management) • Accessing information and support • Impact of illness and treatments on quality of life (daily activities, hobbies, social and family life) |
Symptom burden, management and quality of life • Symptoms experienced • Symptom management and coping • Accessing support and information • Impact on quality of life • Responses to chemotherapy/other treatment • Experiences of blood clots Experiences of injecting (IG) • Administering injections and adherence • Side effects and effects on daily life • Views on continuing with and/or stopping injections Other health care and trial experiences • Experience of receiving information on treatment and illness progression • Experiences of visiting clinic and accessing health care support • Contact with research nurse and experiences of trial-related appointments and information End of study reflections (interview 3) • Views on trial arm status at time of interview (compared with at start of trial) •Perceived changes in symptoms and side effects over course of illness • Differences between expectations of and experiences with treatment • General reflections on experiences of participating in the trial and views on participating in medical research |
CG, control group; IG, intervention group