Table 4.
Participation rates by race and ethnicity among selected NIH-funded cohorts and survey-based cancer survivor studies
| Participation rates by race and ethnicity among NIH funded cohort studies* | ||||||||
|---|---|---|---|---|---|---|---|---|
| Recruitment Methodology | Eligible (N) | Participating (N, % of Eligible) | ||||||
| Cohort size | Hispanic | Non-Hispanic white | Non-Hispanic black | Asian/Pacific Islander | Native American | |||
| Childhood Cancer Survivor Study (CCSS, Expanded Cohort) | US Mail/phone | 15,233 | 10,004 (66%) | 1,063 (67%) | 7615 (70%) | 842 (57%) | 198 (61%) | – |
| The Multiethnic Cohort (MEC)44 | US Mail | 854,613 | 218,780 (30%) | 281,990 (17%) | 136,142 (34%) | 170,694 (21%) | 137,812 (44%) | – |
| Adventist Health Study 2 (AHS-2)45,46 | Community-based | 350,000 | 96,163 (28%) | – | 71,865 (28%) | 25,087 (28%) | – | – |
| Genetic and Epidemiology Study of Cardiovascular Disease in Alaska Natives (GOCADAN)47,48 | Community-based | 7,7000 | 1,214 (74%) | – | – | – | – | 1,214 (74%) |
| Jackson Heart Study (JHS)49 | Community-based | 76,420 | 5,302 (51%) | – | – | 5,302 (51%) | – | – |
| National Health and Nutrition Examination Survey II (NHANES II)50 | 27,801 | 25,286 (91%) | – | 21,359 (91%) | 3,389 (93%) | – | – | |
| National Health and Nutrition Examination Survey III (NHANES III)51 | 39.695 | 33,994# (82%) | 9,751 (87%) | 13,085 (80%) | 9,627 (86%) | – | – | |
| Strong Heart Study (SHS, American Indian)52 | Community-based | 7,305 | 4,529# (62%) | – | – | – | – | 4,529# (62%) |
| Participation rates by race and ethnicity among NIH funded, survey-based cancer survivor studiesˆ | ||||||||
| Recruitment Methodology | Eligible (N) | Participating (N, % of Eligible) | ||||||
| TOTAL | Hispanic | White, Non-Hispanic | Black, Non-Hispanic | Asian/Pacific Islander | Native American | |||
| Childhood Cancer Survivor Study (CCSS, Expanded Cohort) | US Mail/phone | 15,233 | 10,004 (66%) | 1,063 (67%) | 7615 (70%) | 842 (57%) | 198 (61%) | – |
| Project Forward Study53 | US Mail | 470 | 235 (50%) | 121 (49%) | 80 (58%) | – | – | – |
| Adolescent and Young Adult Health Outcomes and Patient Experience Study (AYA-HOPE)54 | US Mail/phone/internet | 1,208 | 524 (43%) | 97 (35%) | 331 (47%) | 42 (38%) | – | – |
| Experience of Care and Health Outcomes of Survivors of Non-Hodgkin Lymphoma (ECHOS-NHL)55 | US Mail | 744 | 408 (55%) | 89 (45%) | 290 (59%) | 29 (49%) | – | – |
| Health, Eating, Activity and Lifestyle Study (HEAL)56 | US Mail/In-person Interview | 3,070 | 856 (29%) | 429 (37%) | 671 (27%) | 1 (2%) | 14 (19%) | |