Table 1.
Descriptive statistics of select demographic and clinical characteristics of the UDC participants, who completed an annual UDC visit, by the year of the visit.
| Year of the HTC visit
|
|||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| 2000 | 2001 | 2002 | 2003 | 2004 | 2005 | 2006 | 2007 | 2008 | 2009 | 2010 | |
| Age group | |||||||||||
| <20 years | 2722 (58.8) | 2944 (60.3) | 3225 (59.7) | 3348 (59.3) | 3513 (58.3) | 3675 (57.9) | 3778 (57.1) | 3857 (57.2) | 3698 (56.2) | 3755 (54.8) | 3499 (53.3) |
| 20–39 years | 1122 (24.2) | 1113 (22.8) | 1251 (23.2) | 1362 (24.1) | 1460 (24.2) | 1544 (24.3) | 1630 (24.6) | 1689 (25.1) | 1680 (25.5) | 1818 (26.6) | 1794 (27.3) |
| 40–59 years | 648 (14.0) | 679 (13.9) | 749 (13.9) | 756 (13.4) | 856 (14.2) | 896 (14.1) | 952 (14.4) | 926 (13.7) | 922 (14.0) | 968 (14.1) | 947 (14.4) |
| 60 years or older | 141 (3.0) | 149 (3.1) | 173 (3.2) | 182 (3.2) | 197 (3.3) | 230 (3.6) | 257 (3.9) | 266 (4.0) | 284 (4.3) | 306 (4.5) | 323 (4.9) |
| Race | |||||||||||
| White (non-Hispanic) | 3302 (71.3) | 3461 (70.9) | 3828 (70.9) | 3902 (69.1) | 4113 (68.3) | 4309 (67.9) | 4539 (68.6) | 4542 (67.4) | 4458 (67.7) | 4636 (67.7) | 4418 (67.3) |
| White (Hispanic) | 434 (9.4) | 541 (11.1) | 607 (11.2) | 690 (12.2) | 735 (12.2) | 800 (12.6) | 776 (11.7) | 818 (12.1) | 864 (13.1) | 859 (12.6) | 823 (12.5) |
| Black (non-Hispanic) | 581 (12.5) | 570 (11.7) | 667 (12.4) | 664 (11.8) | 737 (12.2) | 767 (12.1) | 806 (12.2) | 821 (12.2) | 784 (11.9) | 803 (11.7) | 767 (11.7) |
| Black (Hispanic) | 25 (0.5) | 21 (0.4) | 33 (0.6) | 41 (0.7) | 31 (0.5) | 40 (0.6) | 38 (0.6) | 34 (0.5) | 36 (0.6) | 34 (0.5) | 36 (0.6) |
| Asian/Pacific islander | 122 (2.6) | 126 (2.6) | 95 (1.8) | 159 (2.8) | 159 (2.6) | 170 (2.7) | 170 (2.6) | 215 (3.2) | 187 (2.8) | 195 (2.9) | 191 (2.9) |
| Native American | 38 (0.8) | 41 (0.8) | 37 (0.7) | 40 (0.7) | 66 (1.1) | 60 (1) | 72 (1.1) | 61 (0.9) | 61 (0.9) | 66 (1) | 62 (0.9) |
| Diagnosis | |||||||||||
| Hemophilia-A | 3686 (79.6) | 3851 (78.8) | 4245 (78.6) | 4432 (78.5) | 4787 (79.4) | 5010 (79.0) | 5173 (78.2) | 5340 (79.3) | 5181 (78.7) | 5370 (78.4) | 5207 (79.3) |
| Hemophilia-B | 947 (20.4) | 1034 (21.2) | 1153 (21.4) | 1216 (21.5) | 1239 (20.6) | 1335 (21.0) | 1444 (21.8) | 1398 (20.7) | 1403 (21.3) | 1477 (21.6) | 1356 (20.7) |
| Hemophilia severity | |||||||||||
| Mild | 909 (19.6) | 1047 (21.4) | 1166 (21.6) | 1213 (21.5) | 1227 (20.4) | 1359 (21.4) | 1371 (20.7) | 1453 (21.6) | 1377 (20.9) | 1480 (21.6) | 1438 (21.9) |
| Moderate | 1012 (21.8) | 1081 (22.1) | 1161 (21.5) | 1299 (23.0) | 1373 (22.8) | 1450 (22.9) | 1524 (23.0) | 1540 (22.9) | 1526 (23.2) | 1620 (23.7) | 1491 (22.7) |
| Severe | 2709 (58.5) | 2755 (56.4) | 3067 (56.8) | 3130 (55.4) | 3419 (56.7) | 3525 (55.6) | 3712 (56.1) | 3739 (55.5) | 3673 (55.8) | 3740 (54.6) | 3623 (55.2) |
| Unknown | 3 (0.1) | 2 (0.1) | 4 (0.1) | 6 (0.1) | 7 (0.1) | 11 (0.2) | 10 (0.2) | 6 (0.1) | 8 (0.1) | 7 (0.1) | 11 (0.2) |