Table 3.

Example of the analysis process

I think a frequency of a disease is a good reason to put it on the screening, you know....because it will all depend on the frequency of the disease. If you have a low frequency disease, then it has to be very severe if you want to put it on the screening. If it is a high frequency, maybe you want to put it on the screening even though it is not lethal, for example. So I think that the frequency matters.	The frequently occurring diseases should be put on PCS panel even if they are not lethal. For low-frequently diseases, only the very severe should be screened.	Criteria of disease to test in PCS.	What should we test for?	Uncertainty
It is offered almost as a routine on the…at the antenatal clinic…mödravårdscentral…and it is built into the system as something…if not compulsory..it is almost a clinical routine even though it should not be offered like that but it is	Antenatal screen built into the system as clinical routine although it should not be offered like that	Risk of turning PCS into a clinical routine	Pressure to test	Reproductive freedom
You are healthy unit the age of 40, 50 years of age and in 40, 50 years of age it may be a cure for that disorder. So should we terminate pregnancies or avoid to become pregnant because of something that may not be a problem 50 years from now. That kind of problem I think, or if it is…let us say…some sort of increased risk for developing cancer later in life, how should we counsel patients regarding that if…once again if this problem is solved in 20 years time.	You are healthy till 40 or 50 years of age, a cure maybe found during the time, should we terminate pregnancy with such diseases?	Test for late (adult) onset disease (difficult boundaries)	What should we test?	Uncertainty