Table 2.
Select Survey Questions
| Questions related to patient satisfaction with information received | ||
|---|---|---|
| Were You Satisfied With the Amount of Information You Received | ||
| Topic | Males | Females |
| Treatment-related fertility risks | …about the effect of cancer treatment on your fertility (the ability to have a child from your own sperm)? | …about the effect of cancer treatment on your fertility (the ability to get pregnant naturally and/or carry a pregnancy)? |
| Fertility preservation options | …about the option to bank sperm before treatment? | …about the option to potentially preserve fertility by freezing eggs or embryos before treatment? |
| …to help you decide whether you wanted to freeze eggs or embryos before treatment? | ||
| Assistance with referrals | …about how to find a sperm bank? | …to help you to find a reproductive endocrinologist (fertility specialist)? |
| Alternative family-building options | …about other options to build a family if you were not able to bank sperm (eg, donor sperm, adoption)? | …about other options to build a family if you could not or did not want to preserve fertility before treatment (eg, donor eggs, surrogacy, adoption)? |
| Response options related to patient satisfaction questions | ||
| ❑ I was satisfied with the amount of information | ||
| ❑ I was not satisfied—I did not receive enough information | ||
| ❑ I was not satisfied—it was not discussed at all | ||
| ❑ I was not interested in receiving this information, or it was not applicable to me | ||
| Questions related to helpfulness of written patient education information provided* | ||
| Did your MSK physician or nurse give you written information about fertility? | ||
| ❑ Yes | ||
| ❑ No—I would have liked this information but did not receive it | ||
| ❑ No—I was not interested in receiving this information | ||
| ❑ I do not remember | ||
| Did you read this information about fertility? | ||
| ❑ Yes—it was helpful | ||
| ❑ Yes—it was not helpful | ||
| ❑ No—I did not read it | ||
| ❑ I do not remember | ||
| ❑ I did not receive written information | ||
Abbreviation: MSK, Memorial Sloan Kettering Cancer Center.
*
Only cohort 2 participants were queried because materials were not available before the program was established. In quantifying helpfulness, only patients who received and read the information were included in the denominator.