Table 2.

CNDA Data Sets Available by Request. Updated table available at http://cnda-help.wustl.edu/data-sharing. “X” denotes that data of that type is available. CT data indicated is often acquired in the form of attenuation data on a PET-CT scanner.)

Topic of Study	Study	Description	Subj	MR	PET	CT	Clin	Psych	Tissue	Gene	To Request Data
Alzheimer’s Disease	Healthy Aging and Senile Dementia (HASD), P01AG03991 Knight ADRC	Since 1984, HASD has longitudinally studied older adult (65y+) with annual clinical and cognitive assessments and biomarker measures at longer intervals to distinguish normal aging from dementia due to AD, with emphasis on pre-clinical AD.	417	739	373	X	X	X	X	X	http://knightadrc.wustl.edu/ResourceDB/default2.htm
Alzheimer’s Disease	Alzheimer's Disease Research Center (ADRC), P50AG05681 Knight ADRC	Since 1985, ADRC has longitudinally studied older adult (65y+) with annual clinical and cognitive assessments and biomarker measures at longer intervals to distinguish normal aging from dementia due to AD. Support for all aging/dementia research but with emphasis on pre-clinical AD.	478	974	498	X	X	X	X	X	http://knightadrc.wustl.edu/ResourceDB/default2.htm
Alzheimer’s Disease	Antecedent Biomarkers of AD: the Adult Children Study (ACS), P01AG026276) Knight ADRC	Since 2005, ACS has longitudinally studied participants (ages 45 to 74y at entry with increased AD risk due to a having parent diagnosed with AD) in order to help detect the earliest signs or markers of dementing illnesses, even pre-clinical disease, such as AD.	342	927	859	X	X	X	X	X	http://knightadrc.wustl.edu/ResourceDB/default2.htm
Alzheimer’s Disease	Dominantly Inherited Alzheimer's Network (DIAN), UF1AG032438	Since 2008, DIAN has enrolled adult children (18y+) at 50% risk of inheriting a causative mutation for AD. Mutation carriers and non-carriers are comprehensively assessed longitudinally with clinical, cognitive, imaging and biofluid assessments.	351	696	1308	X	X	X	X	X	http://www.dian-info.org/resourcedb/Data/default.asp
Brain Metabolism	Regional Aerobic Glycolysis in the Human Brain NS08633	Study scanned 33 neurologically normal young adults at rest.	33	33	33						https://cnda-help.wustl.edu/data-sharing-brain-met
Cancer	Comprehensive Neuro-Oncology Data Repository (CONDR), R01NS066905	CONDR focuses on subjects with brain tumors, comparing clinical information, biopsy pathology results, and MRI imaging for each subject.	157	1396	15	X	X		X		http://nrg.wustl.edu/nrg-projects/condr
HIV	Multiple Studies, including R01NR012907, R01NR012657	Data acquired in HIV-related studies over the last 7 years on affected and non-affected individuals over a wide age distribution.	617	745	28		X	X			https://cnda-help.wustl.edu/data-sharing-HIV
Sickle Cell Anemia	Silent Cerebral Infarct Transfusion Trial (SITT)	Now concluded, SITT studied subjects ages 5–14y with sickle cell anemia. The primary aim of the trial was to determine the effectiveness of blood transfusion therapy for the prevention of silent strokes in children.	1074	1575			X				https://cnda-help.wustl.edu/data-sharing-sickle-cell
Tourette Syndrome	Tourette Syndrome Association Neuroimaging Consortium (TSANIC), WU-12–40-MOD-2 NCTE, WU via Tourette Syndrome Association	TSANIC studies subjects 7 to 17y with a diagnosis at any time of a chronic primary tic disorder or TS and at least one tic present in the past 3 months. Control subjects meet the same criterion except with no diagnosis of a lifetime tic disorder, OCD or ADHD.	418	643			X				https://cnda-help.wustl.edu/data-sharing-tourette