Table 1.
Measures collected
| MEASURES | No. of items | Enrollment | Discharge | 3 mos |
|---|---|---|---|---|
| Family: | ||||
| Family relationship index (FRI) | 12 | X | X | |
| Acute Stress Disorder Scale (ASDS) | 18 | X | ||
| Prior illness & hospitalizations for the child | 8 | X | ||
| Depression symptoms (PHQ-9) | 9 | X | X | X |
| Generalized anxiety disorder (GAD-7) | 7 | X | X | X |
| Wake Forest Trust Scale | 8 | X | ||
| Perceived social support (MSPSS) | 12 | X | X | |
| Demographics | 14 | X | ||
| Questionnaire burden | 2 | X | X | X |
| Quality of Communication (QOC) | 8 | X | ||
| Conflict with ICU care team | 1 | X | ||
| Evaluating intervention team (intervention group only) | 4 | X | ||
| Transition from the ICU to lower acuity setting | 6 | X | ||
| Post-Traumatic Stress Disorder (PCL-C) | 17 | X | ||
| Child: | ||||
| Length of stay (ICU & total hospitalization) | 2 | X | ||
| Resource utilization (ICU and total) | 2 | X | ||
| Demographics | 5 | X | ||
| Severity of illness | 1 | X | ||
| Vital status | 1 | X | X | |