Table 1.
Instrument type | Module | Domains | Domains scored individually? | |
General Instruments | ||||
FACT-G15 | Cancer-Specific | N/A | Physical, socia/family, emotional, functional | Yes |
EORTC-QLQ-C3014 | Cancer-Specific | N/A | Functional (physical/role/emotional/ cognitive/social) | Yes |
Symptom (fatigue, nausea, vomiting/pain) | ||||
Single items (dyspnea, insomnia, appetite, constipation, diarrhea, finances) | ||||
Nonmuscle-Invasive Instrument | ||||
EORTC-QLQ-NMIBC2421 | BCSI | C30 | Grouped (urinary symptoms, malaise, future worries, bloating, sexual function, male sexual problems) | No |
Single items (Intravesical treatment issues, sexual intimacy, risk of contaminating partner, sexual enjoyment, female sexual problems) | ||||
Muscle-Invasive Instruments | ||||
EORTC-QLQ-BLM3020 | BCSI | C30 | Single items (urinary symptoms, sexual function, urostomy issues, catheter use, body image) | No |
FACT-Bl-Cys22 | BCSI | FACT-G | Single items (urinary symptoms, sexual interest, bowel function, body image, appetite) | No |
Inclusive Bladder Cancer Instrument | ||||
BCI23 | BCSI | No | Grouped (blader, bowel and sexual function with function and bother subdomains for each) | Yes |
FACT-Bl32 | BCSI | FACT-G | Single items (urinary function, sexual function, bowel function, appetite, ostomy care, body image) | No |
Note: Principle Component Analysis was completed to determine if questionnaire items should be grouped or single. Some questionnaires (the NMIBC24 and C30) have both grouped domains and single items. The BCI is the only BCSI which has individual scores for each domain. See definition of Principal Component Analysis in Appendix 1.