Table I.
Demographic and Medical Characteristics of Children With Sickle Cell Disease and Their Caregivers
| Children (N = 76) | Caregivers (N = 70) | ||
|---|---|---|---|
| Age (M, SD) | 14.05, 3.26 | Caregiver relation to child (n) | |
| Gender (n) | Mother | 62 | |
| Male | 44 | Father | 4 |
| Female | 32 | Grandparent | 4 |
| Racea (n) | Caregiver racea (n) | ||
| African American | 76 | African American | 70 |
| African International | 1 | African International | 1 |
| White | 1 | White | 1 |
| American Indian/Alaska Native | 3 | American Indian/Alaska Native | 5 |
| Ethnicity (n) | Ethnicity (n) | ||
| Hispanic, Latino, or Spanish Origin | 2 | Hispanic, Latino, or Spanish Origin | 1 |
| Insurance Status | Caregiver Education (n) | ||
| Medicaid only | 47 | Some high school | 6 |
| Medicaid and private insurance | 13 | High school diploma | 22 |
| Private insurance only | 16 | Some college | 28 |
| Sickle Cell Subtype (n) | College degree | 13 | |
| HbSS | 48 | More than college degree | 6 |
| HbSC | 19 | ||
| HbSβ0 | 4 | ||
| HbSβ+ | 5 | ||
| Hematocrit (M, SD) | 27.51, 4.96 | ||
| Fetal hemoglobin (M, SD) | 11.27, 9.82 | ||
| Currently taking hydroxyurea (n) | 41 | ||
aParticipants were able to mark multiple selections.