Table 3.
Background characteristics and outcomes.
| Variable | Value | Registered | Randomized | Participant | Control | Intervention |
| N=142 | N=97 | N=87 | N=32 | N=55 | ||
| Age (at registration) | Mean in years (SD) | 57 (14) | 55 (13) | 56 (13) | 56 (14) | 55 (13) |
| Sex, n(%) | Male | 63 (44) | 40 (41) | 34 (39) | 14 (44) | 20 (36) |
| Educationa, n(%) | Low | 16 (11) | 6 (6) | 2 (2) | 2 (6) | 0 |
|
|
Medium | 39 (27) | 23 (24) | 19 (22) | 7 (22) | 12 (22) |
|
|
High | 89 (61) | 68 (70) | 66 (76) | 23 (72) | 43 (78) |
| Member of a patient organizationb, n(%) | Yes | 71 (50) | 60 (62) | 56 (64) | 16 (50) | 40 (73) |
|
|
No | 70 (49) | 37 (38) | 31 (36) | 16 (50) | 15 (27) |
| Internet usec, n(%) | Daily | 128 (90) | 90 (93) | 90 (93) | 29 (91) | 52 (95) |
|
|
Weekly | 10 (7) | 6 (6) | 6 (7) | 3 (9) | 3 (5) |
|
|
Monthly | 2 (1) | 1 (1) | 0 | 0 | 0 |
| Disease-related information | ||||||
| Diagnosis, n(%) | Hodgkin lymphoma | 31 (22) | 22 (23) | 20 (23) | 5 (16) | 15 (27) |
|
|
Non-Hodgkin lymphoma |
105 (74) | 70 (72) | 63 (72) | 26 (82) | 37 (67) |
|
|
Other | 6 (4) | 5 (5) | 4 (5) | 1 (3) | 3 (5) |
| Typeb, n(%) | Indolent | 57 (40) | 38 (39) | 35 (40) | 13 (41) | 22 (40) |
|
|
Aggressive | 41 (29) | 26 (27) | 23 (26) | 8 (25) | 15 (27) |
|
|
Combination | 13 (9) | 10 (10) | 8 (9) | 4 (13) | 4 (7) |
|
|
Not known (yet) | 30 (21) | 23 (24) | 21 (24) | 7 (22) | 14 (25) |
| Time elapsed since diagnosis | Mean in years (SD) | 5.4 (7.7)c | 6.5 (8.3)b | 6.2 (5.5)b | 3.2 (3.7) | 8.0 (10.0) |
|
|
< 1 year, n(%) | 42 (30) | 24 (25) |
|
|
|
|
|
> 1 year, n(%) | 100 70) | 73 (75) |
|
|
|
| Treated, n(%) | Yes | 121 (86) | 89 (92) | 79 (91) | 4 (13) | 4 (7) |
|
|
No | 20 (14) | 8 (8) | 8 (9) | 28 (88) | 51 (93) |
| Current statusb, n(%) | Awaiting test results or treatment (plan) | 19 (13) | 9 (9) | 9 (10) | 4 (13) | 5 (9) |
|
|
Currently getting treatment | 33 (32) | 22 (23) | 19 (22) | 8 (25) | 11 (20) |
|
|
Wait-and-see | 36 (26) | 26 (27) | 25 (29) | 9 (28) | 16 (29) |
|
|
Remission | 53 (38) | 40 (41) | 34 (39) | 11 (34) | 23 (42) |
|
Confidence in communication
(PEPPId) | ||||||
| Perceived, previsit (t0) | Range 10-50 (Cronbach alpha .94) |
N/Ae | N/A | 20.5 (6.3) | 20.3 (6.0) | 20.7 (6.4) |
| Experienced, postvisitf (t1) | Range 10-50 (Cronbach alpha .93) |
N/A | N/A | 16.5 (7.8) | 15.9 (6.7) | 16.9 (8.3) |
| Perceived after > 3 monthsg (t2) | Range 10-50 (Cronbach alpha .93) |
N/A | N/A | 19.3 (5.4) | 19.2 (6.4) | 19.3 (4.7) |
a Classification according to the guidelines of Statistics Netherlands.
b One missing.
c Two missing.
d PEPPI: Perceived Efficacy in Patient-Physician Interactions.
e N/A: not applicable.
f Ntotal=78, Ncontrol=28, Nintervention=50.
g Ntotal=57, Ncontrol=24, Nintervention=33.