Table 3.

Participant opinions on research, consent and use of health information

Statement	Strongly Disagree %	Disagree %	Neutral %	Agree %	Strongly Agree %
1. Promoting good medical research is an important goal for the community	1.4	0.5	0	31.3	65.9
2. Sometimes medical research cannot be undertaken without using individuals identifiable health information	3.8	5.2	13.7	55.5	19.0
3. I trust Research Ethics Boards to make decisions about when individuals’ consent for use of their identifiable health information for research is necessary	0	2.4	16.6	50.7	28.9
4. Sometimes, getting an individual’s consent to use identifiable health information for research might be so difficult that it would prevent the research from being done	1.9	8.1	18.5	51.7	16.1
5. If consent can only be obtained from some individuals and therefore only some information can be gathered, the research results might not be as useful	0.9	10.4	12.3	53.1	20.4
6. Individuals should always be asked if their de-identified health information can be used for medical research	7.1	11.4	11.4	44.5	22.7
7. Individuals should always be asked if their identifiable health information can be used for medical research	2.8	2.4	12.3	45.0	34.6
8. Consent must be obtained in writing or by electronic means (i.e., by email) for it to be OK	3.8	13.3	17.1	41.7	21.3
9. It is OK to obtain consent verbally (i.e., over the phone, or in fact to face discussion)	6.6	25.1	19.4	37.9	8.5
10. When individuals are unable to give their own consent, it is OK to get consent from a family member	3.8	11.8	15.2	54.5	11.4
11. There are risks from researchers using identifiable health information	4.7	16.6	30.3	39.3	6.6
12. There are benefits from researchers using identifiable health information	0.9	4.7	9.0	53.1	29.4
13. I trust medical researchers to use identifiable health information respectfully	0	0.9	13.7	52.6	29.9