Table 3.

Average scores and interpretation of family and family-clinician rapport measures

	Mean(SD)	Score range: directionality
Family measure
Faith and/or spirituality a	1.4 (0.7)	1-4: lower more faith
Financial distress a	2.7 (1)	1-4: lower is less distress
Health literacy b	13 (2)	0-15: lower is worse literacy
Social support a	1.5 (0.8)	1-4: lower is more support
Intensity of coping c	6 (2)	0-8: lower is worse intensity
Quality of life (QOL) d	78 (18)	0-100: lower is worse QOL
Resilience e	31 (6)	0-40: lower is worse resilience
Hope f	1.3 (0.6)	1-4: lower is more hope
Optimism g	1.6 (0.8)	1-4: lower is more optimism
Family-clinician rapport measure
Quality of communication (QOC)h	84 (16)	0-100: lower is worse QOC
Conflict i	3.6 (0.8)	0-4: lower is worse conflict
Therapeutic alliance j	52 (7.2)	0-60: lower is worse alliance

^aLikert scale

^bPeterson’s 3-item scale

^cActive coping domain of the brief cope scale

^dEuro QOL 100-point visual analogue scale

^eCD-RISC Conner-Davidson resilience scale

^fNeuro-QoL NQPPF12

^gItem from the Life Orientation test scale

^hsummary item from the Quality of communication scale

ⁱDecisional conflict scale

^jHuman connection scale