Table 1.

Participant Demographic Data

Variable	% (n)	M (SD)
Mean age		16.0 (2.3)
Gender
Female	50 (15)
Race
African American	100 (30)
SCD genotype
Hgb SS	76.7 (23)
Hgb SC	13.4 (4)
Hgb SD	3.3 (1)
Hb Sβ + thalassemia	3.3 (1)
Hb Sβ 0 thalassemia	3.3 (1)
Healthcare utilization within past 12 months
Emergency Room		1.0 (2.6)
Hospital Admissions		1.2 (2.0)
Clinic Visits		7.4 (6.3)
Participating caregiver
Biological parent	82.7 (19)
Aunt or uncle	8.7 (2)
Step parent	4.3 (1)
Other	4.3 (1)
Caregiver education
No high school degree	21.7 (5)
High school degree	21.7 (5)
Some post-secondary education	21.7 (5)
2-year college degree	13.1 (3)
4-year college degree	13.1 (3)
Graduate school degree	8.7 (2)
Median family income	$20,000 – $29,999

Note. Hb = hemoglobin